Are Products Labeled "BPA-Free" Safer? " By Brenda Goodman, MA Published by Web MD

Hello Everyone,

I read an interesting article today, and I hope you read it too.

Caustic Plastics: I think that I am going to rid my entire apartment of the plastic I can see.  

The dilemna here is our food is stored in plastics, it's everywhere.  Our busy lifestyles make it difficult to make food from scratch.  You go to buy shoes, bags, furniture, gadgets, electronic devices, toys, cars etc. and they are loaded with plastics.   This is especially dangerous for growing kids and teens I believe.

When I was a child we didn't have a lot of toys and we played outside.  Our time was spent on the grass, om a bike, in a tree, on the sidewalk, or on the floor.  Our toys were jump ropes, jax, cards, playing house or store and using blankets to make tents.  Hopscotch, tag, hide and seek, looking for 4 leaf clovers, turning clouds into horses and magic animals in the sky.  Hula hoops and the "The Game of Life" were a few of my favorites.

Oh and of course Lincoln Logs..........  We used our imagination.  Wow we had so much freedom as children back then.  I wish children had the same freedom today.

When mom cooked we really had not too many leftovers to store.  I remember a lot of corning ware and real glassware in the house.  Sigh, times have changed.

Please read and share the article with your friends and family.  Peace and Blessings to you.

Article posted in:

Are Products Labeled 'BPA-Free' Safer? By Brenda Goodman, MA Reviewed by Arefa Cassoobhoy, MD,MPH

Feb. 3, 2015 -- Are goods labeled “BPA-free” healthier? Maybe not. Two new studies found that some chemicals replacing BPA in plastics, food packaging, and other products might also disrupt hormones, changing how the brain works and affecting fertility..................

"Recent studies have suggested that bisphenol-S, which is sometimes used in plastics labeled “BPA-free,” might have some of the same effects in the body as bisphenol-A. What's the concern?"

"Vandenberg: The concern is that these chemicals might mimic the actions of the hormone estrogen, disrupting development of the male and female reproductive tracts, the mammary gland, and the brain, among other things."

READ COMPLETE ARTICLE BY LINKING TO: 

https://www.webmdhealth.com/nl/nlv.aspx?id=81B702FBE5249552&s=32507&mrdid=0a0b09cd-2cb9-e411-aaf7-e83935c0f4a9

Retreat Update and Giving

Hello Everyone,

First off I have very good news about our upcoming healing retreat. Our scheduled dates are from September 17, 2015 through September 20, 2015.  It gives me a nice burst of energy to write this post.

I have spoken with Sr. Laudem several times and I should have formal registration forms soon.  

I will broadcast the complete information, including registration links, as soon as I receive them.  

Please see the post "An Oasis of Hope and Love: The OLCC Retreat Center" dated 01-29-15 for more information about this special event.  

I have a CT scan coming up tomorrow afternoon.  There is a new pain on my right side. Since this could be due to any number of issues my goal is to maintain a balanced in attitude.  

A balanced attitude is a reasonable expectation, I think.  It says "I will allow myself to experience the range of appropriate emotions while I gather my thoughts, pray on it and then do something".  I feel like a professional CT scanee...ha.  I feel strong because I have faith.

I am drifting over to the subject of balance because the season of Lent is here.  For those who observe this season, it is the time to draw nearer to God by prayer, fasting, pennance and almsgiving.

Almsgiving provides each of us, healthy and unhealthy alike, ways unify with our family of neighbors.  As we renew our faith in God, we renew our spirit while helping others.  This gives us balance and can be very rejuvinating.

If you are healthy try to find some time to help a local charity or a neighbor in need.  If you are not well you can give by praying or making a small donation to charity. Maybe you have items that are in good condition and with a little help, they can be donated. 

Give to the homeless, if nothing else, a big smile.  Give them some cheer.  Try not to judge why they are in the condition presented. They need hope and our smiles, our reach, our hand releases them from alienation.

It feels good to give.  

Peace and Blessings,

Servivorgirl

Lord help me to remember that nothing is going to happen to me today that You and I together can't handle. Amen.

N.E.D. The Movie Event Review

I hope you were able to attend the screening of N.E.D. The Movie yesterday, World Cancer Day.  This heartfelt documentary tells the story of gynecology oncology surgeons, and musicians, who dedicate themselves to educating people about gynecological cancers.  They love their patients and love performing their music, using their venue to raise awareness of ovarian cancer.

As a woman who was told that I was too young to have ovarian cancer, when I actually did have it, I fully appreciated the significance and importance of this movie and their mission.  I think these humble surgeons are amazing people, selfless in their cause.

Dr. Barbara Goff, of UWMC and SCCA in Seattle Washington, spoke after the screening.  She was kind, informative and encouraging.  She spoke of advances in treatment protocols and told us the history of how a small donation led her team to the compilation of important research that supports the symptom checklist that we use today.

Dr. Goff stated that the most important take-away from this event was that the parents of boys and girls need to understand the importance of the HPV vaccination.  The reduction of future cancers is staggering when the vaccine is given.

I thank God every day for my time on earth and pray that more and more people see this documentary. The conversation about cancer is never easy and that is especially true when it comes to women's cancers.  The truth is that all women need to know the basic symptoms of these cancers.

Here is the link to N.E.D. The Movie's storywall:

http://www.nedthemovie.com/story-wall/

Peace and Blessings
Servivorgirl

P.S.   I am in the process of scheduling our special retreat at The OLCC Retreat Center.

An Oasis Of Hope and Love: The OLCC Retreat Center

I felt love in a way so different than ever before as a result of my recent retreat experience. Complete love in that we are all children of God.  I felt safe. This was the place for me. Father Dan was abundant with love for each of us.  His story-telling and presence made this journey real because he is genuine and shares with sincerity and humor.  Thank you Father Dan.

I arrived in Corpus Christi as a woman in need of healing. Not just physical healing, but spiritual healing.  I love God, I always have. Every day I have said my prayers and counted my blessings. I also have known that my soul is deeply bruised and my goal to leave this earthly life in full peace with God, my family and friends cannot be met unless I do more.

The serene campus’ focal point, a stunning blue dome, sits atop the Our Lady of Corpus Christi chapel. The gold stars on the dome reflect the vision of Our Lady of Guadalupe. Inside this most beautiful mission style church you can view elegant works of art and the Perpetual Adoration chapel. 

I did not need to be concerned with meeting my basic needs, they take care of that for you. Healthy meals, with my dietary needs, were prepared with love. I stayed in a private room with a private bath. They even transported me to and from the airport. These simple luxuries are provided to us so that we concern ourselves only with healing, prayer and growing closer to God.  Our team leader gently and with great care attended to every question and need.  

You are wondering what I accomplished, what did I learn?  Each individual receives their own rewards.  I will share mine, but to see my face and hear what I have to say would be a better reflection as to the depth of this journey.

I feel so much peace and have not stopped humming.  I want to be with peace for others.  In the world of cancer, this alone can change your life. We suffer so much pain, anxiety, and fear and this circulates around us, impacting the ones we love.  Having a deeper sense of peace will bring people closer to us.  It breaks down communication barriers with doctors and helps family and friends feel more at ease with our discomfort. I will have much more strength for when things turn for me.

It was also revealed to me that several things were interfering with my relationship with God. I was relieved of that burden, I am lighter. Moving forward is now easier.

I can see God, Jesus, in others much more clearly. By seeing God in others we are more loving, even in a state of bodily chaos, our hearts can shine.  I have written about this before and have strived to do this, but had not always been successful.  I feel confident that I will remain able to see God in others, even in the worst times.

On my last evening I was adoring the Blessed Virgin Mary.  The church's entryway has a beautiful statue of Our Lady Mother Mary. As I rested in awe of her, I witnessed for a brief second, her eyes look upon me with mercy.  This may sound ridiculous but trust me, it is true.  I trust in her. I trust in God. It was a very special gift given to me, to share with you.

We are not alone in our battle with cancer. God is with us and wants for us to find and keep His love.  For our journey will not end when we leave this earthly life.  He offers us great comfort.

I want for YOU to feel His comfort in any way possible. I hope you know that I am sincere.

I would like you to send me an email if you are interested in attending a custom retreat for women with cancer, ovarian cancer especially.

I am talking with Sister Laudem Gloriae and Father Dan as to the details. I know of one woman who already who wants to attend.

You do not have to be a Catholic. A donation in leiu of a fee is requested but not required. They do not wish for money to be a barrier.

The OLCC Retreat Center offers a place of hope, peace and love.

You are welcome to attend any of the already scheduled retreats, but if you want to go as part of our special group, please email me as soon as possible.

My email address is servivorgirl@gmail.com and put “OLCC Retreat” in the subject line.

Please make sure you are OK to travel with your doctor.  I am happy to reply to your questions as well.

Here is the link to the retreat: http://www.deepprayer.org

Peace and Blessings from Servivorgirl

100,000 VIEWS Thanks To You

I don't even know what to say.  I am very humbled that this little blog has created such a strong interest.  To be honest, I am stunned. This makes me very happy.

I went back and read a post from May of 2012 at a time when I was in carboplatin desensitization treatment.  I was not a happy camper. Today I am here, not in THAT condition, but much healthier and much happier.

I have no real executive plan or outline as to the content for my blog.

I write about what is important at the moment because that is how life with cancer or any other severe illness runs.  Often times we just live the best we can moment by moment and every plan has a "plan B".

I thank God for all the loving people in my life and I pray for your health and happiness.

Thank you for following along beside me for without you I would not be here.

Peace and Blessings,

Servivorgirl

"NED The Movie" Across America February 4th 2015: WORLD CANCER DAY

What are you doing February 4th, 2015 on World Cancer Day?

All across America, on this special day, Regal Cinema will host screenings of "N.E.D. The Movie".  I have never witnessed a nationwide event like this in the history of ovarian cancer awareness. This is truly something special.

In addition, people in the city of Seattle will have the opportunity to see Dr. Barbara Goff.  Dr. Barbara Goff is a highly accomplished leader in the field of gynecology oncology and will answer questions after the screening in Seattle.  I am very excited about this event.

I have seen this truly inspiring and uplifting film. Their music is awesome.  

This is your chance to see the incredible impact these gynecology oncology surgeons have by using their music to raise awareness of this issue.  See how they save womens lives using their surgical skills. 

They empower all of us by dedicating their time, not only to saving women in the physical sense, but by bringing people together with their music to educate and raise awareness of ovarian cancer.

I also see this event as a vehicle to bridge gaps in understanding between women with ovarian cancer and the loved ones in her life.  

Please click on the links below to find a show at a Regal Cinema near you on February 4th, 2015.

http://www.nedthemovie.com/regal       (Fandango website does require a registration for notifications as to when tickets are available for purchase.)

Meet Dr. Barbara Goff: http://www.seattlecca.org/doctor/barbara-a-goff.cfm

I will see you in Seattle on February 4th, 2015!

Peace and Blessings

Servivorgirl

Saying Goodbye To Anger

Welome to 2015!

To be honest, I feel like it is already February.  The first 9 days of 2015 have been packed full with major decisions, fluctuations in my state of health, being magnetized by and consumed with finishing the Bible and being true to my calling, as best I can be. With all this I have not had the energy keep up with the level of watch over the ovarian cancer community like I would prefer.

So as I write this I am deflated, sad, because I just learned that a 17 year old young woman has died from ovarian cancer.  #SamStrong May she rest in peace.

Before I learned of her death my original intention was to do a post about cancer and dental care.  I wanted to keep the first post of 2015 simple. There is just too much to mention so I will sum that portion of this post up by saying this:  "Google Biofilm and follow the recommendations to keep biofilm at bay".  Your teeth wil love you. 

Spiritual care is of course much more involved.

In the next few weeks I will be attending a 3 day spiritual retreat of silence and prayer.  As God has offered ways for me to keep helping other people I find that I am more and more inspired to learn as much as I can about Love from God and His Mercy. I thought I had understood this, but I had not.

I did not know the young woman who left her family and friends so early but there must have been a deeply rooted feeling of brotherly love within her circle.  If you search #SamStrong you will see all the wonderful things she accomplished during her short life.  Her spirit inspires me. She seemed to have mercy.

Someone close to me recently said that when it comes to God things will be revealed to you when you are ready.  Each soul on earth is on a separate timeline but we all are welcome to receive God at anytime, if we choose to do so. God gave us free will.

So although I have been dissappointed in myself for taking so long to read through the Bible, I will not berate myself.  I have finished reading through Romans and in the past few weeks I have been enlighted in so many ways.  

I recently realized that I had been holding onto anger about a particular scenario.  I thought it had gone, but it hadn't.  By the acts of confession, prayer and studying I am truly beginning to understand what mercy is.  

I am not a model but am dedicated to having true mercy from this point on.  

Anger is the enemy.  The priest said that even justified anger serves no real purpose and that God wants us to have mercy in the way that Christ Jesus has mercy.  I want every ounce of anger out of my soul and it will be a labor of love to do so.  I do not want to die with any anger in my heart.

I plan to write about my retreat experience in hopes that some of you may be inspired to heal yourself in spirit too.  This will help our bodies.

Thank you for following along with this disorganized post.  I will be looking for other women to join me on another spiritual retreat that will include prayer and dedication to healing from illness as well, whether you are the patient or loved one.  You do not have to be Catholic to attend.  

Please email me if you may be interested at servivorgirl@gmail.com.

Peace and Blessings,

Servivorgirl

Happy Holidays From Servivorgirl and Merry Christmas

My sweet cat Marilyn and I are rejoicing in the miracle of our Lord Jesus Christ.  This is a bittersweet Christmas. 

My heart aches.  I miss my mom.  I am also very grateful to be alive on this day to celebrate the season of the birth of our Lord.  I love my family, friends and treatment team.

To my friends who celebrate in other ways may you be joyful and with peace this holiday season.

Seasons Greetings to all.

Love,

Servivorgirl

The Perfect Tree

Missing you all and needing to say that I wish I had the energy to write more often.  I am still sleeping 12 to 15 hours per day.  I had the pleasure of getting a short respite with family over the past few weeks and some interesting new things happened while I was there. 

It is worth noting that my Avastin dosage has increased because I continue to gain weight.  (The weight gain is an entirely separate post, too complex to even discuss.) Ha!  

Anyways, I was walking on the kitchen floor and heard a cracking sound in my left foot.  The popping sound that accompanied a sudden surge of pain and inability to bear weight on said foot sent me to the ER.  I had only been there an hour!  Ha.  I am now wearing a big walking boot and do have a fracture in my left foot.  

Then for two days non-stop I was bedridden with terrible nausea and an evil headache.  What???  I am  on vacation.  

We missed the local tree lighting ceremony with all the holiday extras.  I felt terrible for my aunt. Instead of us walking around the town relishing in holiday cheer she was busy taking care of me.  I love my aunt so much.  I plan to visit next year for a do-over.

Then, yes there is still more, I had to go to the ER a second time because I had unexplained chest pain, neck pain and pain with shortness of breath.  Geeeeeze leweeeeze!

They treated me as if I was having a cardiac issue or embolism.  This has never happened before.  I was panicky to say the least.  When it first happened the noise of the TV was hard to bear and I could not turn my head.  The pain along my neck was on both sides, intense and sharp.

I was given a nitroglycerin patch, IV Lorazapam and some sort of blood thinner. The ER staff and physician were incredibly polite and efficient. They drew labs for cardiac enzymes, checked my legs and chest for blood clots and admitted me for overnight observation. They drew two more enzyme labs over the course of my stay and performed a stress test on my heart. I was very impressed and am so grateful for receiving such a complete cardiac work up. 

After all of THAT, my heart is in good shape, thank you dear Lord.  

What the cause of this mysterious chest episode was, I do not know. If it happens again then I will be referred to a cardiologist, per my PCP.

So this is where we get to the "perfect tree" part.  I return from my vacation exhausted, sleep 23 hours, and sadly realize that I can't get my Christmas tree without help.

I was delighted and thankful to find two ladies who selected, transported and set up a tree for me. To honor my mom, who passed away last November, I wanted to purchase my Christmas tree from Swanson's Nursery.  Swansons was her favorite nursery, such a beautiful place.

My Christmas tree is the perfect tree.  It represents real life.  The curved trunk, uneven branches, the way it appears as if it might just topple over at any moment.  I checked, it is secured tightly to the stand. It will never look balanced and even.  My tree this year is not a calming tree. It symbolizes unexpectedness and awkwardess, sufferig and loss, yet displays beauty and joy.

My Christmas tree is telling me to stay alert.  It is also taking forever to decorate.  As I write this post I am yet to hang the ornaments I received after mom died.  The box is here, it is the last box of ornaments to hang.  

I will do that tomorrow and post a photo when I am done.

As we embrace these next few weeks of holiday joy, from all cultures and religions, I pray you find your spirit renewed.  I will be blogging soon with more Christmas cheer.....I hope.

Merry Christmas

Servivorgirl

 

Happy Thanksgiving

This day we give special thanks for all the goodness in our lives.  We think of those we love, those we've lost and those who are in need.  Even in our worst moments there is hope from God's love.  Never forget that you are loved.  God Bless you and your loved ones this Thanksgiving holiday.

Thank you God for this interesting and challenging life, and for all the love from my family and friends. 

Missing mom.  I love you mom.

Peace, Blessings and Love

Servivorgirl

The Holidays In Small Doses

Ladies, I am thinking about those of you who are on your first course, or any course, of intensive chemotherapy. This time of year is an exceptionally difficult time to be experiencing side effects from surgery and treatments.  

I had spent several hours drafting a lengthy and detailed post that I was hoping could assist you in preparing for Thanksgiving.  God had other plans.  It got deleted, poof!  It must have been too long, ha! 

Do as I do, they say.  Here is the abbreviated version.

Maintain the essance of the holidays with simplicity, in every way.  Truly, keep things simple.

Mimimize expectations.  Worry not about tradition and what people think.  Trust in the people who love you. Let people help you.

Your body, mind, emotions and spirit are in turmoil.  Simplicity will help you keep your feet on the ground.

If you are a woman of faith, ask for God's help.  Ask people to pray for you.

I sigh heavily remembering how overwhelming everything felt during that first course of treatment, still in severe pain from my debulking surgery.  Experiencing the holiday season in small doses is just easier. 

I did wonder about things like how many more holidays do I have with my loved ones.  That is normal, for the most part.  Spreading out the opportunities to be with the people you love may help deflect some of that worry in your heart. 

If there is only one major event to attend, an enormous amount of pressure exists to make the most out of THAT one thing.  Instead pencil in more options for smaller manageable events here and there. If by chance you are feeling beat up on the actual celebration day, your cup will still feel full.

Well, you know what I mean.      

As the old saying goes, don't place all your eggs in one basket.  

I just want to avail myself as a sounding board.  I love this time of year.  I am so thankful and grateful for my family, friends, doctors and to God that I am here.  What else can I say?

Hugs.

Peace and blessings,

Servivorgirl

World Vision.org and Medgift.com

Sometimes we feel like the wind gets knocked out of our sails. Yesterday was definitely one of those days.  I have been spending time preparing to honor my mom on Sunday, as it would be her birthday. November is a hard month now, the anniversary of mom's passing, mom's birthday and moving through Thanksgiving, her favorite holiday.

Lot's of grief this month.  When I saw Diem Brown had died from ovarian cancer I cried.  She was a truly spirited and cheerful warrior. My tears reflected so much loss in our family and the knowingnes of another fighter removing her gloves.

I miss my mom so much.  Sunday I will celebrate her birthday with prayer and fond memory, looking at photos.  I feel kind of crazy, but it comforts me to talk to her whilst adoring her photo.  Sometimes I just stroke the hair in mom's photo and tell her how much I love and miss her.  I tell her I am sorry for being such a bratty teenager, for not being nice all the time, for fighting with her on our trip to New Mexico, for not spending enough time with her, for being a total failure as far as career goes and for not using my brain like I should have.

I can go on and on.  I pray that she is the first angel I see in heaven one day.

I am exhausted from treatments and grief but look for colors and light throughout each day, as I have nothing to complain about. 

I am sharing two different things today that I hope will inspire you.

1.   Here is a link to an interview with Diem Brown about her heartfelt charity, Medgift.com.  A patient gift registry that eases the burden when sick and in need.

http://video.foxnews.com/v/1513484978001/reality-star-launches-patient-gift-registry/#sp=show-clips

2.  I have sponsored a child via World Vision who shares the same birthday as my mom.  This sweet child and her family are in great need and World Vision is one of only a few international charities trusted by mom.  World Vision also helps children in the United States.

I felt a little funny filtering by birthdate, but I did accept the very first child that came up in the search.  I wanted to sponsor all the kids, ya know what I mean?  

So one unique way to honor a loved ones's passing is to sponsor a child in need. It is very fulfilling and most of all provides tangible resources and goodnes that can offer hope to the suffering.

Here is a link to their site:  http://www.worldvision.org/m/sponsor-a-child/?campaign=1193512&gclid=Cj0KEQiAkJyjBRClorTki_7Zx8QBEiQAcqwGMdt1CQr3f-ohDZYMdx3qfWE8AQ3gSJWMYPAgETI0vtgaAgm_8P8HAQ

I Love You and Miss You...........

Peace and Blessings,

Servivorgirl

Rest In Peace Sweet Diem Brown

REST IN PEACE SWEET DIEM BROWN

Diem Brown Dies

Please select the link above for one of the many stories about this young woman's life.  Ovarian cancer may have claimed her body, but her spirit will live forever.

This news has broken many hearts today.

A star on earth is now a star in the heavens.

May we find a cure so no more women die.

When Susan Talks, People Listen

Those of us in the world of ovarian cancer can often feel that we are in a little bubble, off to the side, having a small voice in the big world of cancer.  We are reluctant participants, not all wanting to share our stories. When we do share, we do so in different ways.  Some keep their pain and suffering close, opening up only to close friends and family.  Some unveil their agony in the way of art, music and writing. Others reveal their angst in the way of talking and reaching out in person.

I know of one such angel that can comfortably speak about her ovarian cancer and her name is Susan Malman.  She is very outgoing, high spirited and courageous.  Her chummy personality has drawn many supportive people towards her.  She has stage 4 ovarian cancer, suffers greatly, yet creates the time and energy to go out into the world and have fun.  

Seriously, this chick loves to enjoy life.  She will find a way to go out to a concert, sing karaoke or meet her friends, all the while experiencing chemotherapy side effects.  Not much can keep her down.

When she is out and about she tells people about her cancer.  Susan puts herself out there because she wants to help other women to learn about what we know today to be common symptoms of ovarian cancer.  It makes a difference.

Susan literally helped to save one woman from being diagnosed at a late stage of ovarian cancer. Had Susan not taken time to express with passion the accounts of her life and struggles with ovarian cancer, one woman may have discovered her fate too late.  God Bless you Susan.

Here are Susan's humble words......

About a month ago I had chemo and went to the gas station up the street for some ice. The girl asked me what cancer do I have and I told her ovarian stage 4. She asked what are the systems. I told her and gave her a card with the sytems on it. She told me she has all the systems. I told her don't waste time, have certain test(s) done and insist on it.

She did. A month later, I saw her tonight. With a huge line, (she) came around the corner (she) gave me a big hug, and said "thank you because of your story and making me get checked they found I have the early stages of ovarian cancer. Now I am being treated".

So now I feel so good inside that after 3 years of fighting it I helped someone and saved their life.

St. Peregrine Pray For Us

I have prayed many times for the intercession of St. Peregrine, the Patron Saint for those ailing with cancer and other very serious illnesses.

It is exceptionally difficult to convey the depth of emotion, faith and hope in prayer via my little blog.

I have prayed to St. Peregrine for myself, for people that I love and for my cancer bearing sisters and brothers.  I believe.

One evening, after nine days of praying the Novena to St. Peregrine, I knew I was sent a message.  I was in a hospital and a physician, who went by the name of Dr. Peregrino, stepped on the elevator.  I knew his name only because a nurse called out to him just before he stepped inside. 

The doctor looked right into my eyes as if he knew me. This happened directly after receiving exciting news that someone I love did not have cancer after all, it was ruled out.  Because of the intense way this man looked at me, his name, and the feeling I had at right at that moment, I knew St. Peregrine had heard me.

A prayer to St. Peregrine

Dear St. Peregrine, I need your help. I feel so uncertain of my life right now. This serious illness makes me long for a sign of God’s love. Help me to imitate your enduring faith when you faced the challenge of cancer. Allow me to trust the Lord the way you did in this moment of distress. I want to be cured, but right now I ask God for the strength to bear the cross in my life. I seek the power to proclaim God’s presence in my life despite hardship, anguish, and fear I now experience. O glorious St. Peregrine, be an inspiration to me and petitioner of these needed graces from our loving father. 

Amen.

If you visit this website, you will see many more prayers to St. Peregrine and learn about his history.

Saint Peregrine .com

We need LOTS of prayers, especially with respect to the cost of chemotherapy.

I just read a very disturbing article on Times.com that Genentech is unnecessarily altering its distribution channels for Avastin and two other critical cancer medications, forcing the prices to go higher. This is a prime example as to why medical care must not operate via supply and demand frame of reference. 

Here is the link:  http://time.com/3541484/cancer-drug-price-hikes/

Peace and blessings,

Servivorgirl

Ovariancancer101.org, What A Wonderful Group

Now back to the core of the reason I started this blog, to raise awareness for ovarian cancer.  I want to introduce you to an organization started by a womderful woman who sadly lost her mom to late stage ovarian cancer.  How it was discovered will shock you.

Ovarian cancer is very tricky indeed.  Scary tricky.  Please visit this site to learn about her history and also about a beautiful treasure being promoted to raise funds.  I personally do not raise money, but periodically will write about others who do.

This Christmas tree comes with gifts!


Decorated-Christmas-Tree-And-All-The-Presents-Current-Value-$7-400-Drawing-To-Be-Held-Saturday-December-13th-@7-45pm-Tree-shown-is-our-2013-tree/p/29213750/category=0


I would love to have a beautifully decorated Teal Christmas tree in my apartment this year.  Time to buy a ticket.

Please visit  Ovarian Cancer 101.org for more information.

My next post will be about one of my favorite Saints,  Saint Peregrine.

Peace and Blessings,
Servivorgirl

Ebola Protocol Manual

chttp://www.voanews.com/content/ebola-september-3/2436904.html


If you are reading this post in real time you are probably aware that most hospitals in the United States are not prepared to properly treat patients with Ebola virus and congruently keep healthcare workers safe.

I cannot imagine why this is a problem.  We have had plenty of warning and there are links that provide detailed protocol on how to meticulously protect both the patient, other patients and anyone who comes into contact with the patient and patient fluids.

Here is a very detailed link that is designed for healthcare administrators to understand fully the scale of supplies, type of personal protective equipment and how to donn and doff the equipment.

Although this is written for field hospitals, our US based hospitals need to follow the core elements exaxtly as written.  It seems to me that training would be based on this kind of manual.  

That nurses and other employees at the hospital in Dallas did not have this information as part of a required training is criminal.

This link advises on two pairs of gloves!  Head to toe coverage and a separate changing area.  It is 209 pages.  There is no excuse for any hospital administrator's lack of preparedness.

We as individuals also need to take personal responsibility as well.  No matter what the situation, we must at all times be aware of personal risk and safety, either as a patient or caregiver.  We need to speak up right away and if nobody is listening, keep talking until someon does. It can literally be a matter of life or death.

People with cancer just need to be minful that it is beneficial to us to always keep protective gear on hand, especially when travelling.  Items such as masks and gloves are very important because we cannot predict when or where we will encounter a situation wherein someone else is sick.  Keep these supplies in a sealed bag, such as a ziplock bag, along with alcohol swabs and antibacterial gel.

CDC Manual     The Pdf link is at the bottom.

I hope someone finds this manual useful, as it is very thorough.

Peace and blessings,
Servivorgirl

The Male Side Of Breast Cancer

The colors on the wheel go round and round......round and round......round and round.

Before I begin my posts for October I want to thank "Curves" of Crown Hill, in Seattle Washington.  The owner of this franchise graciously allowed me to bring in gynecological awareness handouts created by the Seattle Cancer Care Alliance.  "Curves" was hosting an open house and I had some table time with many members while distributing valuable information about gynecological cancer awareness, and my story with ovarian cancer.

We utilized the information found on the CDC "Inside Knowledge" Campaign and I am pleased to report that many women stated that this information was very helpful.  This way they not only learned about ovarian cancer, but all the major potential symptoms of gynecological cancers.

I was pleased to do this and hopefullly a few more women will be able to work more effectively with their physicians, should they have a concern in the future.  It also brought to the surface an opportunity for several women to talk about either their own or another's battle with some form of cancer.  

Thank you "Curves".  I also decided to become a member.  The program is not hard on my smaller joints (currently in a bit of trouble due to RA) and I really need the extra support.  I am finding this program comfortable, adaptable and most of all, FUN!  I will post progress, if it's good.  Ha!

Now to Men's Breast Health:

To start October off I thought it would be important to incorporate some information about hereditary breast cancer, in men.  My search landed me on a very thorough and educational article written in Medical News Today. 

Men are not likely to see themselves as potential breast cancer patients.  They can and do get breast cancer.  We can see that men all over the country do support this cause. Most men probably never considered that wearing pink can help them too.  Please share......

Quote from Medical News Today....

'It is vital for everyone to be breast aware'

"Women are encouraged to frequently check their breasts for any abnormalities, such as lumps, discharge from the nipple or changes in appearance or texture. And although many men may not be aware of it, they should do the same.

The most common signs of breast cancer in men are lumps or swelling in the breast or lymph node areas, dimpling or puckering of the skin, nipple retraction, nipple discharge and scaling or redness of the nipple or surrounding skin."

Whiteman, H. (2014, October 1). "Breast cancer: are men the forgotten victims?." Medical News Today. Retrieved from
http://www.medicalnewstoday.com/articles/283317.php.

Peace and blessings,

Servivorgirl

Gynonc Surgeons To Rock Our World In D.C. Oct 1, 2014

I have to say that I was elated and shining from within after attending a recent showing of N.E.D. The Movie  This uplifting documentary speaks so intimately and powerfully about the wrath of ovarian cancer, as voiced by the surgeons in NED The Band.  N.E.D. stands for "no evidence of disease".  That is our goal!

I had no idea what to expect, but what I felt was a sense of pure dedication and purpose.  These highly skilled and honorable gynecological oncologists are also gifted with musicality.  They use their events and cd inserts as a vehicle to start the conversation about ovarian cancer.  Their music though is for the masses.  They are a rock band through and through!

Please link to their homepage for more about their music, their movie and their mission.
N.E.D. The Band

I want to thank Deborah Binder for hosting the event in beautiful Edmonds, WA to raise funds for

Seattle F.O.R.C.E. Facing Our Risk of Cancer Empowered  and National Hereditary Breast and Ovarian Cancer Week

Here is a note from Deborah.... "I am so glad that you were able to attend the NED movie and that you enjoyed it.

Most gyn-oncs know N.E.D. because they have played many times at the national oncology conferences around the USA.  I first heard them one year in D.C. at the National Ovarian Cancer Alliance meeting.  I know that my doc.--Dr. Goff and Dr. Muntz know them.

Last October I traveled to Portland to see the movie--a fundraiser for the Southern Washington and Oregon Ovarian Cancer Alliance.  After I saw it I knew that I wanted to do a similar event for OVCA Awareness month in 2014.  I rented the Edmonds Theater (it's where I live and I wanted to use a small hometown theatre not a megaplex) and I rented the movie from Spark Media".

Hugs,

Deborah

....................................................................
if you live in the D.C. area........

Congresswoman Debbie Wasserman Schultz is hosting a movie event in D.C. on October 1, 2014.  Please spread the word so that more money can be allocated to fight these cancers.

Capitol Hill Screening

First Street Southeast
Washington

Website  LINK Description Representatives Debbie Wasserman Schultz & Renee Ellmers present a Congressional screening of No Evidence of Disease, featuring a live performance and panel discussion with members of N.E.D. This special event will take place on October 1st, 2014 at 6:15 PM.
Email info@sparkmedia.org


N.E.D. The Movie Screenings link


Peace and Blessings,

Servivorgirl

Fibronectin And Our Cancer

Ovarian Cancer Dream Team Call for Ideas Now Open

The American Association for Cancer Research is now accepting submissions of ideas for the new Stand Up To Cancer Ovarian Cancer Translational Research Dream Team Grant that will offer up to $6 million in research funding, which includes $3 million provided by the leading funder, OCRF.

The Stand Up To Cancer-Ovarian Cancer Research Fund-Ovarian Cancer National Alliance-National Ovarian Cancer Coalition Translational Research Dream Team grant provides three years of funding for research projects that must include therapeutic interventions for ovarian cancer and deliver near-term patient benefit through investigation by a multidisciplinary, multi-institutional Dream Team of experts. Proposals for the grant must describe plans indicating how the group will use a transformative and synergistic approach, and how the work will be translated into the clinic. To maximize creativity, innovation, and collaboration, the projects should span multiple disciplines and use modern scientific tools to attack research questions in a coordinated effort.

Letters of Intent for SU2C-OCRF-OCNA-NOCC Translational Research Dream Team Grant are due by noon ET, Nov. 7, 2014, via proposalCENTRAL.

Read the full press here.

FIBRONECTIN AND CANCER

Please take a moment to link to the article below, posted by the Ovarian Cancer Research Fund.   As a non-scientist, I found it invaluable towards my understanding of how ovarian cancer cells proliferate, specifically in the omentum.  Learn about fibronectin and its role in the spreading of cancer.

http://www.ocrf.org/news/research/ocrf-research-finds-metastasis-promoted-by-mesothelial-cells

Peace and blessings,

Servivorgirl

A Hippo Has My Campus

I grew up in Colorado.  I consider the Denver metro area fairly easy to navigate. One of my jobs after college involved daily travel, criss-crossing across town helping people regain independence after illness or injury.  I really should know the basics and major Denver area streets, even if I have been away all this time.

I always had considered myself someone who was good with directions.  I always knew where I was, even when I was in a new city or town.  I rarely got lost.  I was never afraid to drive for the sake of driving.  I used to love to get in my car and go, just see where I would be.  I could never do that now, after all of this chemotherapy....eeks.

Even after moving to California, I was still the same, had a great sense of direction and rarely got lost.  It was one of the few areas that gave me confidence, my sense of direction.

Well, my sense of direction has gone kablooey.  I am not sad and will try to remember to adapt, but I find it extremely interesting that "navigation" is such a specific area of loss for me.  I also have difficulty with estimating time.  I am always late now.......sorry everyone.

I just got back from visiting family and friends.  It was one of the best short little trips ever.  Just plain fun and it was a real treat to see everyone.  I can affirm though that I definitely am not the same confident navigator that I used to be.  I got lost 5 of the 7 times I went to meet people.

I got lost going from the airport to see my dad.  I got lost going to and from my brother's house.  I got lost going to see an old friend, where I had been before.

I got lost going to Denver International Airport.  My flight back home was after 9 pm and there I was driving around the countryside in the dark, looking for alternate routes to Pena Blvd.  Maybe next time I will get GPS.  To be honest, I was a little nervous.....and somehow it all worked out.  I barely got to DIA in time, whew.  I thought I was going to miss my plane!

I have no idea how I found the airport.  I would have called to get help after a few more minutes of driving in circles, but I am sort of concerned that this chemo brain is getting worse.  It seems that I forget what I am doing, lose track of time and get lost on a regular basis.  Maybe it is not worse, just more noticeable?

I get lost going to my dentist every time.  So strange.  

I am linking a few interesting articles on brain function and chemobrain.  It is an area of high interest for researchers and it does seem that the hippocampus, an area responsible for navigation, can be damaged by some chemotherapy agents.

I can't believe I got lost going to the airport.  Ha!  I think I should get a GPS, what do you think?


http://www.ncbi.nlm.nih.gov/pmc/articles/PMC45501/

Low Doses of Cisplatin Can Damage Hippocampus


What Happens When A Neurosurgeon Cuts Out Your Hippocampus

Love, 

Servivorgirl

Penn Team Finds Ovarian Cancer Oncogene in "Junk DNA"

http://www.uphs.upenn.edu/news/News_Releases/2014/09/zhang/

For those of you interested in genetics, here is a fascinating article relating new findings with "junk DNA" and it's effect on BRCA genes and mutations.

I am not a scientist myself, it takes time to read.

What impresses me is that this particular type of research enables us to create a way to stop cancer if the links are proven and consistent.

There is always hope.  I thank my cousin for sending this to me from Penn State.


Peace and Blessings,
Servivorgirl

The Seattle Great Wheel Turns Teal

The Seattle Great Wheel is a hometown favorite, not just because it's lighting displays are so colorful, but also due to the company's contribution to the Seattle community. 

After my treatment last week I went down to the Wheel, it was  pure TEAL.  As you may be aware, September is ovarian and gynecological cancer awareness month.  Being able to benefit from this beautiful display of color makes us happy. 

The folks at The Seattle Great Wheel care.

I have been exhausted and extremely scatter-brained. For example, I have actually misplaced purchased groceries three times in the last 2 months.  I am overheated all the time. My hands have not really worked well for almost a year now.

I just stumble along doing my best to make a difference.

Thank you Seattle Great Wheel. www.seattlegreatwheel.com

Please share this with 100 women.......you will make a difference.

I hope you enjoy the ride and the beautiful view.

Love,

Servivorgirl

annotations will not show when viewing from an Ipad, so sorry

Pierce Brosnan : Joining Our Forces To Disarm Ovarian Cancer

Pierce Brosnan shared with the nation a few hours ago the enormous pain and suffering he and his family endured due to ovarian cancer.  He lost both his loving wife and adoring daughter to this terrible disease.  

He stepped on stage during the Stand Up 2 Cancer Event on 09-05-14 with hopeful eyes and an urgent voice.  He brought with him a powerful message.  A message that the three most powerful non-profit organizations dedicated to ending ovarian cancer are teaming up to save lives.  

I feel confident and empowered.  I hope you feel the same.

Please watch this moving You Tube video clip and go to the OCRF website for their important press release and details about this unprecedented movement in ovarian cancer research.

I pray for his family and the souls of his dearly dearly departed wife and daughter.

Peace and Blessings,

Servivorgirl

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"Our First Ovarian Cancer Dream Team" Pierce Brosnan 09-05-14 <link>

New Stand Up To Cancer Ovarian Cancer Dream Team Announced

Ovarian Cancer Community Joins Forces to Fight Deadliest Gynecologic Cancer

A groundbreaking collaboration among three national ovarian cancer organizations was announced during the Stand Up to Cancer telecast on Friday evening, September 5th. Ovarian Cancer Research Fund (OCRF), Ovarian Cancer National Alliance (OCNA), and National Ovarian Cancer Coalition (NOCC) have teamed up with Stand Up To Cancer to fund a new Translational Research Ovarian Cancer Dream Team dedicated to piloting leading-edge ovarian cancer research that will help patients and save lives. Read the full press release here.

Ovarian Cancer Research Fund is a not-for-profit 501(c)(3) organization.© 2012 Copyright Ovarian Cancer Research Fund. All Rights Reserved

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N.E.D. The Movie And My Thoughts About This Special Time

Benefit Screening of Film Documentary:  N.E.D.   No Evidence of Disease

90,000 women will be diagnosed with a GYN cancer this year, and unfortunately one-third of them will die.  Often patients will say, “I didn’t know,” referring to the signs and symptoms, which often go unnoticed and undiagnosed until it is too late.  That is why it is so important for a film like No Evidence of Disease to be seen by a large audience.

Please join me for a special one-time screening of No Evidence ofDisease on Sunday, September 28 at the Edmonds Theatre. Proceeds from this screening will be donated to the nonprofit FORCE (Facing our Risk of Cancer Empowered www.facingourrisk.org) Please help get the word out about this film.  Making vital information about this intimidating subject accessible is no easy task, but No Evidence of Disease, through a compelling combination of storytelling and music, accomplishes it.

You can purchase tickets for this event at:  http://www.brownpapertickets.com/event/688161

In 2008, six cancer surgeons from around the country discovered their shared passion for medicine extended to music.  What began as a one-time gig playing cover songs for fellow surgeons turned into a rock band, named for the words every cancer patient dreams of hearing, No Evidence of Disease (N.E.D).

The award-winning documentary of the same name, No Evidence ofDisease, interweaves the harrowing experiences and remarkable courage of women, devoted families, and these dedicated musician-doctors. As music and medicine join forces in the fight for life, the surgeons are transformed into rising rock stars, and their patients and loved ones jump on the bandwagon, infusing the struggle for survival with heart, hope and Rock ‘n’ Roll.

Check out the trailer for the film here: https://vimeo.com/57960109.  The film was also featured in U.S. News and World Report:http://health.usnews.com/health-news/health-wellness/articles/2013/09/03/surgeons-form-band-ned-to-raise-gyn-cancer-awareness.

It would be wonderful to see you in the audience, and please help me spread the word. This is an opportunity to spend time with friends whilecreating life-saving awareness of this disease.  Your presence will have an exponential effect – the best tool for us to save lives is knowledge, and this screening is a great way to get it.

Deborah Binder

DX OVCA June, 2009 and currently “dancing with NED”

Questions? Contact me at 425-361-3942 or jaideborah@yahoo.com

Hello From sunny Seattle!

I am typing this section of my post with the new Hanx Writer app on my ipad.  To be honest, this is really fun.  I love the clickity clack and zingy sounds.  It Brings me me back in time.  High school typing class, white-out, correction ribbon and lots of do-overs come to mind. I am not the best typist.  So I am really happy that our most adorable fan favorite, one of my favorite actors, Tom Hanks, created this for me and you.

Well, speaking of entertainers, I have an exciting event to tell you about.  One of our sisters, Deborah Binder, is hosting an benefit up in Edmonds called "N.E.D. The Movie".

N.E.D. stands for "no evidence of disease". A state of N.E.D. is every cancer patient's dream.  It represents a time before we are "cured".

For me, while in front line chemo, I relied on faith to get me there, along with family and friends, but truth being told, I was not prepared. I prayed as often as I could but in the back of my mind, I needed to see it to believe it. I was N.E.D. for about 2 years, which is a gift from God.  Now I remain in my first recurrence.

Our N.E.D. time is precious and often fleeting. Make a plan!

I did not feel well enough to travel, and like everyone else, responsibilities of real life become more pressing as we make a valiant effort to get back to normal.  Insurance, medical leave and expenses demand that we get back to work.

I am all for a law that provides for at least 90 days of recovery during N.E.D. Going through aggressive cancer treatment is a full time job so getting a true vacation from cancer and stress would improve the recovery process, in my mind.  Ok, enough politics.

Make a plan and get the support of your family and friends.  It is up to us to lead this and let people know that when we reach N.E.D. we want and need to reward ourselves, and honor those who have helped us along the way.  

It is so difficult to make a plan when we are in a chemo cloud of pain, nausea, brain fog and legitimate uncertainty.  Sometimes all we need is a weekend of fun, or a mini trip to a favorite getaway.  Maybe it is a quiet celebration with loved ones. The months of N.E.D. are a treasure, a time when we get to visualize our lives as living with a greater purpose, with more urgency.

So while we are figuring out work and other day to day priorities, set aside time every day for your spiritual, creative and empowered self.  Do what you love if at all possible.

Celebrate this special time and communicate to others that although the treatments have stopped, our bodies, your body, needs time to heal.  It may take a few months or even years.  Allow them to process that this time of healing can take extra time, so ask for their patience.

Please visit the quaint city of Edmonds on 09-28-14 for this special event!  I will see you there!

Peace and blessings,

Servivorgirl