CDC Symptom Diary Card

Saturday, October 22, 2011

A Rebirth and a new place

It's been a while since I shared  news about my status.  My apologies as I have been moving, and well, I'm tired.  Lot's of emotions moving out of my dear mom's home into an empty apartment.  But it was time, and mom really wanted this for me.  Love you mom.

Every morning for the past two years mom and I would enjoy our coffee together and catch up on the news.  I would eat my oatmeal and for two hours or so, life was heavenly.  Even if I was in pain or tired from chemo, we would still enjoy that time together.  I would get to hear tid bits of stories from long ago about her childhood, or a rant about something important politically in the world.  Mom holds back on nothing.

I really didn't want to leave, especially now that she is on dialysis.  The house is too small and her plate is full with questions, worries, and concerns for her future.  She needs time and space for peace now.  I see her  a lot anyway, so it won't be too bad.  I just really miss her so much.

Now I'm in a secure apartment managed by a very kind woman who thinks of this complex as a community.  I like that.  I will include a photo in my blog when I get my furniture and pictures arranged.  I found a small wooden table as a give-away, and am using that for my dining table.  Mom was so generous to give me one of her couches and a living room side chair.  My sister and her husband helped me move, thank you guys!!!!

It feels like a dorm room right now, not really homey.

Thanks to comcast and their evil doings, I have no television.  I'm trying to look at this lack of television as an opportunity to reflect and pray more.  It's probably a good thing at the end of the day.  I miss my CNN and Hoda and Kathy though.  No cooking channel, what's a girl to do?  Ha.  Thanks to Pat and Mandy for offering Hulu to help with the TV.....yaaaaaaaaaaaaaaaaaaaaaaaaay!

I just found out my niece passed a black belt flip test last night...............yaaaaaaaaaaaaaaaaaaaaay.  Later today I hope to see my other niece at a performance in the zoo.  The rest of the family is well overall, I wish we all lived in the same area, like when we were little kids.  I really do.

On the medical front, my CA125 is 11 and my latest exam was normal.  In 3 months I have a pelvic CT scan.  My mammogram and breast MRI are good too, but I'm still seeking the opinion of a surgeon to consider a prophylactic mastectomy.  Sigh.  Still totally undecided, I just want to talk.

That's all for now.  I really hope you are well.  Peace and blessings and hugs and smiles to you.

Thursday, October 06, 2011

Steve Jobs 1955-2011

Steve Jobs 1955-2011

This brilliant man died yesterday fighting a never ending battle with cancer and the health complications of his war.  Cancer steals our souls, our hearts, our minds.

 We must actually find a cure, not some sort of palliative medication that allows us to "live with cancer as a chronic condition". 

I'm sorry,  I don't want to dampen our hopes or be "negative".  I'm just being real.

I don't want cancer to become a chronic disease.  It needs to remain a disease to be cured!!!!!!!

Every single person on this planet carries equal value and importance, but few of us actually soar above the flock and really make a true, positive difference for the masses.  Steve Jobs was an individual who's vision changed the way the world communicates.

For the fleeting moment along the spectrum of time wherein each of us breathes God's sweet air, we must strive to do only good.  When drug companies decide to desire to do good, we will find a cure for cancer. 

Peace, Blessings and condolences to the Jobs Family and people at Apple.

Steve Jobs, Rest in Peace

Tuesday, October 04, 2011

Join Yale University to do the WALC-N Study

Hello Teal Family,

I am grateful to be participating in a very important study, about walking and our health as women who have experienced the wrath of ovarian cancer.  If you, or any woman you know, is interested in participating in this very important study, please contact Yale University.  This is a fully randomized study.

Please forward this to all of your teal sisters.  There is no other study of this nature being offered in the Ovarian Cancer community.  Your participation could save a life.

From WALC-N Study at Yale University:

We are inviting women diagnosed with ovarian cancer and living anywhere in the USA to participate in the 
WALC-N Study (sounds like “walking”). 

This research study will examine if a 6-month home-based walking program, with weekly phone calls and counseling from our certified personal trainer, will improve quality of life, fatigue and other ovarian cancer outcomes.