CDC Symptom Diary Card

Sunday, March 13, 2022

Cystoscopy Tomorrow

​Hello Friends,

First off God granted me a most undeserved assurance I could be able tolerate Taxol.  I just learned that I accidentally ingested peanuts last Thursday.  I can't wait to message my doctor.  So it's possible I was not super-sick last week from Taxol. I am relieved because my options are few.

I am allergic to peanuts and it incapacitates me for 24 hours or more. You can only imagine all the GI issues, headaches dehydration and shortness of breath.  My stomach is still very sensitive.  

My ANC is also .5, almost at "I need wear a hazmat suit time", super low. I am allergic to neulasta, so it's actually a red alert issue.

Tonight God lead me to take another look at the ingredients of the granola bar I ate last week. I'm half blind and did not see that the almond bar also contains peanuts. 

We had to hold off on Taxol this past Friday because my neutrophils are too low.

I am scheduled for toddler Taxol this coming Friday. I need my ANC to go up. 

I have this silver-dollar size tumor on/in bladder dome.  My cystoscopy is scheduled for this coming Tuesday.  All I can say is I pray it doesn't hurt.  I don't want to have to go through a radical surgery. 

I'm a water baby, I need my water activities like I need  air sometimes. My water time is prayer and reflection time; my persoal sanctuary. Literally. Radical surgeries would pry render me unable to be in my little sanctuary.

I was grateful to speak with my palliative care nurse last week.  She has empathy and is my navigator to help with navigating my cross.

May dear Jesus use my suffering for His Glorious Will. Thank you Lord for tonights ray of Hope and Love. God help those in Ukraine.


Until again,

Servivorgirl


Saturday, March 05, 2022

Toddler Size Taxol All Around

Hello friends,


Such a sleepy night but I wanted to tell you I love you.  I am back on Taxol, but the doses are smaller and administered weekly.  My infusion nurse calls them toddler doses.  I will also remain on Avastin. 


The reason for toddler taxol is because I'm allergic to neulasta.  The lower dosage on a frequent basis is less likely to tank my neutrophils. Well, it's not in my hands but in the way I have been grilling people, you'd think it was. I'm a mess, I was blindsided by the bladder tumor. 


A radiology report from a year ago didn't mention an important abnormality and now I probably have cancer on or in my bladder.  My "ptsd" is in full swing, feeling like I'm back in 2008 all over again. Thanking Jesus for my gynonc. 


Well I am super sleepy.  I want to start sharing my journey again.  It feels less hopeful only because my body is beaten up from years of medication.  My heart is not beaten up and I still have a few vacations to take, if I can get someone to take me.   Ha.


Love and more to come.  God Bless you. πŸŒΈ❤️πŸŒΈπŸ™πŸ»πŸŒΈ❤️πŸ™πŸ»

Friday, August 27, 2021

A Brand New Day

Today was a great day!  I had the pleasure of speaking with a health professional to discuss my anxiety.  I learned another coping skill and feel more empowered to cut off an episode at the pass.  

I had not been able to sleep several nights this past week, haunted by things at the hospital. I recognize that certain things are triggers that can draw me down into a rabbit hole and in spite of my love for Jesus and prayer, I am vulnerable to succumbing to those triggers.

I felt so welcome today, everyone was just so nice. I thanked the Lord over and over for His grace today. I thanked the Lord for all the people who helped me today and that someone listened. God Bless them.

Psychological care is a vital component of our overall healthcare plan as people with cancer, cancer survivors and for caregivers. I know I will always need psychological support. 

If you feel like you need mental health care, please talk with your doctor or nurse. God Bless you.







Monday, August 16, 2021

12 Years Praise To God

I love the Lord and when I went to confession a few weeks ago I offered in full, to Jesus, ALL of my sorrow and anxiety and pain to Jesus for the repose of the soul of my dear sweet brother. May he REST IN PEACE. πŸ’” I know that God wants for me to focus on HIM because if I focus on the pain of the world, the pain of my life, my soul will suffer in the end. I pray for his sweet kids. I also pray for my sister, and her kids, as she lost her husband last December.πŸ’”

I strive to NOT WASTE my suffering but I don't always remember to do so.

I think this post reflects on the dangers of keeping grudges. Don't do this to yourself and please do not hold them against others, especially ones who really do love you. Learn to forgive, please.

A priest recently reminded me that doing the work of God can make people very angry, but not to let that stop me. I suffer from family estrangement because I refused to follow hateful orders. I was told not to take calls from my uncle (US Veteran) who suffers from bipolar and PTSD. He was off his meds and causing a lot of trouble. I was not given an explanation just told not to take his calls.  In my heart that was wrong, and I took his calls. He was suicidal, God saved his life (with my help) and I lost my aunts' love. They hold a grudge against me still for helping him. This is the only thing I can publicly discuss where I think it will help you. I can't tell you how emotionally messed up I feel sometimes because of this but I know God did not want me to ostracize him.  It wrecks me for a few hours, then I remember God loves each person equally, and we are supposed to love each other.  I did the right thing.

My loving sister stuck with me all the way during front line treatment, through all of my suffering and I will forever be GRATEFUL to her for that.  My mom put up with so much of my rage  ( I lived with her) because of the medical errors that happened prior to my diagnosis.  I never got the psychological help I needed to deal with the anger. I am so sorry mom (she is in heaven and no longer has to deal with any suffering).  

I no longer hold a grudge against my doctors in California (pre-cancer) but what continues to happen is the emotional pain gets triggered every now and then. My brother died of cancer and now I am flooded with the memories of all the rage I had back then. I am slowly coming around.

Remember, I was told many times I was too young to have ovarian cancer, while I WAS TELLING MY SYMPTOMS OVER AND OVER, I WAS IGNORED. Of course I had rage for several years.  That was why I named this blog "Nobody" has ovarian cancer.  I no longer have rage, hold no grudge, but the memories come back sometimes, like now. My mom suffered because of me, but I got no help. The massive steroids made me a wreck too, which did not help.  I was so messed up by the steroids that I was fearful to walk outside, the clouds were too dark and I was afraid of dogs. I was a hot mess during front line treatment.  It took two years of my own begging to get a psychologist!

The cancer community did not want to admit that this gross medical error occurred on the part of PCP and OBGYN community, so I never received the psychological support that I needed to manage the rage.  I hate myself for that.  Fast forward to today, I still have anxiety and depression, but it is well-managed. I am not perfect and still to this day most medical staff do not want patients with anxiety.  I feel it all the time. They are so cheery when a patient they like arrives. Look up anticipatory anxiety.

I have to re-think my purpose for living because God is all good, all loving, all merciful and all Truth.  He has me here.  I would have in a second given myself to save my brother or Pat.  I mean that, truly.  God what do you need of me and I pray for you to give me grace to fulfill your will. 

I pray for Thy grace to flow over those whom I love, who have let me go, but if your will is for me to be without them, I will have to accept that. I need you to help me live with that for I cannot bear it.

I am sorry that this post is not the cheery FB positive cheeky happy post you were expecting.  I wish I had some positive photo of me surrounded by a bunch of people wearing teal shirts that say "you go girl" but I don't. I do however still show that loving photo of my sister and I on my last day of front line chemo.  I love you Mandy.

Maybe other cancer survivors or other people with chronic or life threatening conditions who are also single will read this and simply understand.  I have no husband holding my hand when I go to the clinic. I feel vulnerable. Nobody's face lights up when they see me. I need to change so that they do. I will try.

If you are a person who is loved and surrounded by your whole family and lots of friends who adore you, be grateful.  Be grateful they don't hold grudges against you forever. You are abundantly Blessed.  

To the ones who care about me and love me, You mean everything to me. To the ones who have let me go, I love you too.

Be forgiving. 

God Bless you all.





Monday, November 04, 2019

The Command To Be Perfect

Hello friends,

As you may know, Sr. Anne Marie Walsh of SOLT and I host a free monthly spiritual exercise group/support group for people wounded by cancer.  This includes patients, spouses, loved ones, cancer survivors and for those who have lost a loved one due to cancer.  Our group also hosts retreats on a periodic basis to help those who would like to take special time away from day to day distractions and focus on their relationship with Jesus, in light of their situation related to cancer and health.

Tonight we are hosting a call with Sr. Anne Marie about "The Command To Be Perfect".  This will be a very interesting spiritual exercise because our society, especially in more advanced cultures, really alters what is meant by perfect and we are simply incapable of reaching "perfection".

I went on a retreat in Iowa at Domus Trinitatis about two weeks ago and must say it was truly challenging for me spiritually.  I was experiencing more of our Lord's suffering than joy but continue to reflect on that in total and strive to apply this to my current life as I focus on being closer to Him.

The link to tonight's session is on our website and can be found by clicking here

This past year has really been challenging physically. I won't bore you with all the details but let's just say I am really struggling physically.  If I didn't have a true Love for God, the Saints and our Blessed Mother who knows where I would be.  I always stay grateful that I am alive to tell about it.  I really do understand how fortunate I am. 

Thank you for listening and I hope you have some time to visit our website at https://facingourimmortality.org/.

Peace and Blessings,
Denise
aka Servivorgirl!