CDC Symptom Diary Card

Thursday, January 06, 2011


Pleasantly surprised to find that the seasons channel on cable is still playing Christmas music..yay.  Anyway, I wanted to share up to dates on health, work progress, help needed, etc.  My body feels "OK" and I think the new supplements and cantelope are helping my belly.  My nausea is not as strong, still every day, but more manageable.......which gives me great hope.

First, since I've been battling cold with strong cough, I had to reschedule the psyche appointment.  I hope to see them this month.  I really do need at least one visit, especially after I finsih telling you about my appointment with voc rehab.

Second, went for CA125 lab and port flush yesterday.  I asked them to pull a CBC because it's time to get my WBC we'll see.  I'll know all that in a few days.

Third, I see the breast nurse practitiioner at end of month for thorough breast exam....for BRCA1 mutation maintenance.  Let's hope all goes well and no lumps please.

Fourth, voc rehab is driving me crazy.  I met with "G", nice enough young man.  He claims he never received my medical records until lately.  But after I asked him to look, they were stamped as having been received by end of October. WHEN IM MET WITH THE FIRST PERSON IN EARLY OCTOBER, I SAID I HAD RESOURCES TIL END OF JANUARY, THEN THAT WAS IT. 

Well, here we are and the next step is for me to do a community based trial work for 2-3 weeks, unpaid.

The want to see if I' ready to return to work.  The problem is that "G: didn't even know what skills I had or anything.  Plus, I already said that going back to my original type of work was bad because my arthritis is worse since my cancer.  I can do spurts of things, like wash car, or clean room, or move small piece of furniture......but working 8 hours per day filing or typing is way different.  I need a new career!!!!!!!!!!!

ASSUMING I LIVE long enough to graduate!

I hate these people.  They have it all backwards and are not geared for cancer patients.  I only earn 626 per month on disability.  I just need a fricken part time job that won't kill me, and have that for a bit to build up my tolerance.  Then I want to do some training to see about working at home!!!!!!!!!!!!

If I go back on chemo, which I probably will have a recurrence, than I can work from home.

Why is this so hard to understand?????????????????????????????????????????

Plus mom wants me to move out soon, she will be starting some serious health treatments and would prefer to be alone.  I can understand that, but she'll need some help.....

I just don't understand why she won't just let me help for a while when I'm working part time, so that I'm there in case she needs someone and I'm then able to build up residual to move out.

No, now I don't know what I'm going to do.  I'll keep looking for part time work along with the millions of other people.............I hate this fucking disease.  Meanwhile the bitch who misdiagnosed me is earning a healthy stocky MD figure living the high life.  Fuck her.


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