I go by #Servivorgirl. Celebrating almost 14 years since diagnosis of stage IIIC ovarian cancer, recently restaged to IVB. My blog is called Nobody Has Ovarian Cancer because I felt like a nobody upon the eventual correct diagnosis. Being told multiple times that I was too young to have ovarian cancer, I did not receive the proper testing. I am so grateful to Him for all those who allow me to share my love, to those who love me and those who treat my illness. I praise Him always.
Thursday, September 30, 2010
Thursday, September 23, 2010
Update from Oncologist
I met with Dr. Gray today, what a joy. She shared good news, and I am relieved. I am still NED and my CA125 is now 10. She said the CT scan showed no new tumors and looked good, so I am relieved. Recurrence is my biggest fear.
I talked with her about my lingering issues with abdominal pain, fatigue, nystagmus, vomiting etc. She reinforced that the body can take up to a year to heal from the chemotherapy and surgery. But overall, I am improving. I see the Oncologist again in three months.
I need to watch my food intake probably forever, being careful with fiber. Haven't decided on an allergy test yet, but will just avoid peanuts for now at all costs.
This good news frees my mind and helps me to be more hopeful for the future. I meet with Dept of Vocational Rehabilitation in a few weeks and need to see if I qualify for any of their services. I can earn some money in addition to the small disability income I currently receive. If it is at all possible, my dream would be to have a part time job that is homebased, in advocacy or some form of computer work that has a mild training program.
So off I go to the next step while I continue to rebuild my strength, endurance and digestive health. Thank you God for blessing me with my mom, sister,brother-in-law, brother, aunts, and uncles who have been so supportive. Thank you God for giving me friends who have offered laughs, kind words and support from day one. Thank you God for blessing me with an amazing health team here in Seattle. God Bless everyone who has touched my life.
Be Love
I talked with her about my lingering issues with abdominal pain, fatigue, nystagmus, vomiting etc. She reinforced that the body can take up to a year to heal from the chemotherapy and surgery. But overall, I am improving. I see the Oncologist again in three months.
I need to watch my food intake probably forever, being careful with fiber. Haven't decided on an allergy test yet, but will just avoid peanuts for now at all costs.
This good news frees my mind and helps me to be more hopeful for the future. I meet with Dept of Vocational Rehabilitation in a few weeks and need to see if I qualify for any of their services. I can earn some money in addition to the small disability income I currently receive. If it is at all possible, my dream would be to have a part time job that is homebased, in advocacy or some form of computer work that has a mild training program.
So off I go to the next step while I continue to rebuild my strength, endurance and digestive health. Thank you God for blessing me with my mom, sister,brother-in-law, brother, aunts, and uncles who have been so supportive. Thank you God for giving me friends who have offered laughs, kind words and support from day one. Thank you God for blessing me with an amazing health team here in Seattle. God Bless everyone who has touched my life.
Be Love
Tuesday, September 21, 2010
Update on Breast Health
Today I went in for my mammogram and breast ultrasound. The nurse practitioner had recommended the ultrasound due to her locating some enlarged dense tissue on my right breast. Well hallalua and thanks Be to God, no lumps or abnormal tissue was detected today.
Because I am BRCA 1 mutation positive, I need to see the NP in three months for a follow up breast exam, just so she can determine if the area changes ins shape or size.
WHEW!
If I must have a mastectomy, I will have one. But for now, since the monitoring is going well, it is so so nice not to have to be so worried about breast cancer. I have enough to worry about with ovarian cancer recurrance rate issues.
So thank you all for your prayers. Thank you God for watching over me and giving me something to smile about.
Be Love and God Bless!
Because I am BRCA 1 mutation positive, I need to see the NP in three months for a follow up breast exam, just so she can determine if the area changes ins shape or size.
WHEW!
If I must have a mastectomy, I will have one. But for now, since the monitoring is going well, it is so so nice not to have to be so worried about breast cancer. I have enough to worry about with ovarian cancer recurrance rate issues.
So thank you all for your prayers. Thank you God for watching over me and giving me something to smile about.
Be Love and God Bless!
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