CDC Symptom Diary Card

Wednesday, June 16, 2010

Johanna's Law

Johanna's Law was introduced to the Senate on June 15th 2010 by Senators Spector, Stabenow and Menendez.  This law would allow the CDC and Secretary of Health and Human Services to increase resources allocated to raise awareness and education of gynecological cancers, such as Ovarian Cancer.

This is great news!  I've never seen a pamplet or handout about Ovarian Cancer in any doctor's office.  You never see public service announcements or commercials about the horrid disease.  Health education classes certainly don't talk about it.  I never had a gynecologist talk to me about the symptoms of Ovarian Cancer (except to say I was too young to have it).

Cancer is so scary, especially a gynecological cancer.  We as females are so dependent on our health care providers to be the eyes and ears of diagnosis.  Especially since anyone would want to minimize symptoms as a natural defense, we need our doctors to be more aggressive at looking for the early signs of ovarian cancer.  We as patients cannot do it alone.

Be love,
Denise

Thursday, June 10, 2010

Death

Yesterday, while at SCCA, I had the pleasure to speak with a spiritual advisor.  We spoke about coping with cancer, living and of course, death.  We talked about chemo brain.  It was a good conversation.

Last night a young 18 year old male was killed by a drunk driver on I-5, yet I am here.  AGAIN, we all have a purpose.  I pray for his family.  Is it random by chance?

Does God see the world through our eyes or His?  I just wonder sometimes. 

I am afraid to die, but am also doing everything I can to find peace with the idea.  I am reading the Bible, hoping to finish it soon.  God comforts me and sometimes I want to be wrapped in his arms.  I want for everyone to feel that same sense of comfort. Is it like an eternal state of sleep?  In the mean time, while here on earth, I want to be happy and be happiness for others.  I don't want to worry about small problems.  I want to be love.

I told the advisor, I'll call her "M", that being on chemo feels like you're living in a Johnny Depp movie all the time.  Everything is warped.  I was so afraid of everything, even a knock at the door.  I couldn't follow conversations, felt like an invisible magnetic force was keeping me away from everything and everyone.  Sort of like floating, but not in a good way.  Be patient if you are helping someone on chemo, they aren't all the way there, not fully present.  Yet they ache with every cell in their body and spirit to be present, to participate, to live!

To my family, I promise not to leave a mess when I go and not to burden you with unfinished business.  Between now and then, I promise to be as involved, motivated and loving as I can.  I want to enjoy my life with you, I want to live to the fullest. 

Be Love, Denise

OCRF

The Ovarian Cancer Research Fund is a great place to look for the latest on OC research.  Please take a look and support this cause.