More on New York, it stays with you always

Mom on the way to New York City May 7, 2012

Our cabbie was a great driver

The NBC Today Show Studio crawl

Me with the producer and her camera ladies...yay

Kate in the middle with her camera ladies

Mom enjoying the 360 degree View Restaurant, what a spectacular way to see New York

In New York, everything is big and tall

A view from "The View"

More views

And another view

A view once more

Things sure look small down there

Times Square

Times Square

Our first look at the city, arriving late into the evening

Mom and I have yet to take our little get away on Bainbridge Island, but we will soon.  It's just been a whacky time since we got back.  It took forever for me to even find photos because I had lost my cell phone at JFK airport.  Luckily I got it back.  Mom had severely bruised her tail bone getting into a cab that Tuesday and we spent all of Wed handling that.

As it turns out, mom had the ride of her life on a pedi-cab the day before the show.  She was in awful pain and finally we decided to go into a clinic.  Kate was such a gem helping us out with all of this, but getting there was crazy.

In New York they say take a cab everywhere.  Seems harmless....NOT. You can't catch a cab on smaller side streets, you have to walk to a busy corner.  My poor mom, walking around with me trying to find a cab.  So after one cabbie refused to take us...seriously.....this wonderful Irishman with bright blue eyes came up to us in his little pedi-cab and asked if we needed a ride.

I have to tell ya, I was not real confident in that, as the day before I saw pedi-cab race across four lanes of heavy traffic practically tipping the whole thing over.  Mom was excited.  We explained that she was in tremendous pain and that we were on our way to an urgent care clinic.  He promised me that he would go slow and take good care of my mom.  So we got in and held on...weeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

Mom laughed and laughed and laughed and laughed and laughed.  She said that was exactly what she needed.  It was also a great way to see the city.  I have a small video clip of our ride...........

It was a trip of a lifetime and we will never forget it.  Thank you Kathie Lee Gifford, Hoda Kotb and Kate for hosting us.  Thank you to David Friedman, Chandra Lee Schwartz, Davy Wild, and of course Kathie Lee Gifford for creating such a beautiful song "Strong Like You" from me to my mom.

Here it is over a month has gone by.  I go into the hospital tomorrow for my 4th round of chemotherapy desensitization.  I went chemo shopping today for soups, veggies, yogurt, etc etc etc.  Of course I forgot my colace and flax seeds.  I just want it over with.  Not looking forward to almost 10 days of bad nausea.

I have been sleeping 12 hours per day for a long time.

Mom has been in hospital twice since the trip.  Geeze.  She can't catch a break but looked great today.  She is just a real trooper.  She is all excited because her sister is coming out to visit.

My sweet sister is finally up and around again, the whole family dealing with whooping cough.  Can you imagine?

Several of our teal sisters have passed away this past month, and that is really hard.  I pray for their families and hope that they can keep the conversation going.

Every day can be rich with life, the little joys and the small smiles that really warm your heart....that is what we need to look for each day.  Can't worry too much about what may or may not come.

I have a beautiful and loving family, a kitty cat that just gives me pure joy and I think she is happy too.  I have really nice friends and most of all I have God.  We all have Him there to love us and carry our pains.

I love you all......................Denise

Art doesn't fall far from the tree

My mom taught her well.  My sister is showing her works on Poppytalk Hand Made, as well as on her blog.  I always enjoy her work.  It makes me smile and brings me joy.

Those of us with chronic illnesses, no matter the name of it, deal with many of the same issues. Pain, disruption of life, lingering thoughts about how we have used our time up until now.  "Could I have done better?"  "If only I would have done this or not done that."  We have no answers, only God knows these things.

What I do know is that we need art and music and play and laughter to be part of our lives, in a big way.  It's healing to see beautiful art.  We go to distant lands or other places and either imagine wonderful things or remember experiences that made an impact.  Granted, we may not always feel "good" but art is about truth.  Truth is cleansing, and cleansing brings about peace with our selves, which can bring about peace with others.

I love you sis!  Good work!

Poppytalk: Affordable Art: weathered silo: One of our participants this month at Poppytalk Handmade is Mandy of weathered silo . As we feature affordable art this coming week, I'm ...

A song for mom. "Strong Like You", by Kathie Lee Gifford and David Friedman

http://video.today.msnbc.msn.com/today/47372225#47372225

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My mom and I had the most amazing experience on the Today Show.

She is such an inspiration to me.  I know she can be an inspiration to others.  We all have our challenges.

Kathie Lee Gifford and Hoda Kotb are so incredibly sweet, so thoughtful, so kind, so sincerely interested.  What an honor for mom and I to have had this chance. I watch the show all the time, it always makes me smile.  Being on the set gave me a permanent smile.  Love and hugs to Kathie Lee and Hoda, I sincerely care about you.  My mom told me she really felt that your sweetness, care and love.  I wish my mom was writing this in her words, but you know what I mean.

All the people on the set, hair, makeup were so courteous and happy and you can tell that the people at NBC love what they do. Bobby, thanks for the joy and for doing my hair.

On the set, you can feel the positive energy in the air.  You need something, all you have to do is ask.

For my essay to have been selected from the hundreds or however many are submitted is just a miracle.  Kathie Lee was so genuine in providing prayers to us and I could feel her spirit.  I just can't believe I was in Hoda and Kathie's presence, wow.

I wish I could write out all the laughter and joy that my mom is feeling right now.  The trip was a real challenge, because we both have some limitations and mom just pushed through everything like the trooper that she is.  I love the look on my mom's face right now, she is BEAMING!

Thank you Kathie Lee and David Friedman for creating such an incredibly beautiful and inspiring musical piece for my mom. WOW, that is truly amazing.  I posted on my FB page that I am truly humbled.  I feel like God has lifted us with this truly beautiful gift.  Chandra Lee Schwartz, your voice is so beautiful. Davy Wild, thank you for your keyboard talent.

Katherine Cook, you are incredible, thank you so much.  You are so responsive and talented, please give everyone a huge hug from me and mom.  Superhug to you!

I hope to find my cell phone because it has all our precious photos from the trip.  I was crying my eyes out on the way home.  I lost it somewhere between the security checkpoint and the gate at JFK.  I wish I had worn a camcorder on my head the whole time.  New York City is just indescribable, and we were overwhelmed.  I mean, what can I say.  You have to be there I guess to understand.  It's huge.....you almost fall over backwards looking up to the top of the skyline.

To my sister and aunt who helped with getting the photos and helping get us ready to go, a major huge hug and love to you.........what a whirlwind.

I pray I did not forget anyone.  There is so much more to tell..

This was a once in a life-time opportunity.   I love you mom!

Denise

Mom and I will be on KLG and Hoda this Thursday

I am extremely proud of my mom and can't wait to see the glow on her face when she gets a chance to share her life with Kathie Lee Gifford and Hoda Kotb.  I had written into the show about how inspiring my mom was to me in helping me cope with ovarian cancer and how much strength she demonstrates in her constant battle with Type I diabetes.  It is a miracle that she is not on dialysis at this time, and her having her heart attack on Valentine's Day may have played  a role in her healing, of all things.  I call it a miracle.

I had asked God for just a little more freedom for her, and here we are.  You will get to know her as a person, a real human being, and know why I love mom so much.

I am so so so so so so so so so so so so so happy that my essay has touched my favorite producer in the whole world.  I'll call her "K" for now.  She has been so generous and I can't wait to meet her and Kathie Lee Gifford, Hoda Kotb, and Sara Haines and the rest of the Today family.

I owe a million thanks also to my sister Mandy, brother Arnie, aunt "D" for really digging in and physically helping me through my transition from California to Seattle.  My sister especially, because she had sacrificed so much precious time with her young children and husband, and their lives are so busy.

Caregivers are so important, whether they are literally caring for you or being that angel in waiting, as a shoulder to cry on.  I love my entire family so much, I just can't say it loud enough.

I know that most of all, we are so proud of mom.  Mom I love you with all my heart and want to thank you for all that you have given me.

I can't wait to write about our experience.

Peace, Love and Blessings to you all.

Denise

Rivkin Center awards grant for cognitive study

CONGRATULATIONS DR. GRAY!

Heidi Gray, MD

University of Washington

Behavioral and neural indices of cognitive rehabilitation in ovarian cancer

Millions of ovarian cancer survivors live with residual symptoms of impaired thinking and impaired memory severe enough to interfere with basic activities of daily living and work. However, very little is known about how to treat problems in cognition. Pharmacologic interventions have only been modestly helpful, if at all, and not all patients desire or are able to take medications. Dr. Gray will examine the ability of a 7-week cognitive rehabilitation intervention to improve memory and thinking abilities in ovarian cancer survivors. In addition, the project will measure changes in brain activity patterns from the treatment using neuroimaging.

The Rivkin Center is delighted to announce the recipients of its 2012 Scientific Grants. With another record-breaking year in grant funding, the Rivkin Center has awarded over $1 million in research grants to better understand and combat ovarian cancer. This year 3 Scientific Scholar Awards and 10 Pilot Study Awards were conferred in addition to funding for the second year of the two-year Challenge Grant.   A one-year award of $60,000, our Scientific Scholar Award is intended to assist promising young laboratory and clinical scientists in pursuing a career in ovarian cancer research. For more about our Scientific Scholars and their funded projects, click here.   Christina Gewinner, PhD Anne Noonan, MB BCh BAO Brigitte Theriault, PhD   2012 Skacel Family Scholar   2012 Gilman Family Scholar    University Health Network     xUniversity College London   National Cancer Institute   A one-year award of $75,000, our Pilot Study Program will support investigator-initiated pilot projects in all areas of ovarian cancer research. For more about our Pilot Study Awardees and their funded projects, click here.   Matjaz Barboric, PhD Lavakumar Karyampudi, PhD   University of Helsinki   Mayo Clinic  Heather Cunliffe, PhD Ilona Kryczek, PhD   Translational Genomics Research Institute   University of Michigan Tyler Curiel, MD, MPH Fang-Tsyr Lin, MD, PhD   Univ. of Texas Health Science Center at San Antonio   Baylor College of Medicine Heidi Gray, MD Meera Nanjundan, BSc, PhD   University of Washington   University of South Florida  Shelley Hooks, PhD Jeremy Stark, PhD   University of Georgia   Beckman Research Inst. of the City of Hope   The 2011 Scientific Challenge Grant, a two-year, $150,000 research grant focuses on the origins of ovarian cancer with the goal of accelerating the early detection of ovarian cancer. For more about our Scientific Challenge Grant, click here.   David Bowtell, PhD   2011-2013 Lester and Bernice Smith Fellow   Peter MacCallum Cancer Center