Update: Thank you all so much for your prayers! They really helped.
I had a really good appt with my new oncologist and I am so pleased. They did apologize for mishap. I will get increasd in Taxol but we will keep it to what I can handle. I am so relieved that my new team is supportive. Thank you again... ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Bladder Dome Tumor increasing in size. Wrong DIAGNOSIS on CT order for today. WRONG diagnosis on radiology report. What I had to go through to get a corrective addendum is completely unacceptable!!!!
I have a new medical oncologist and mistakes are already happening. I am going to go insane or dive into a severe depression. I can't take any more medical errors!!!!!!!!!!! I missed an entire year of potential treatment to knock back my ovarian cancer mets, when it had not spread as much, because the radiologist did not write down all the correct information Feb of 2021! Now I have no idea what will work.
My psychologist is trying to find me a counselor who does EMDR therapy for PTSD. I contacted one last week, no reply.
My new oncologist told me (re: incomplete radiology reports) at my first visit with him 'it happens all the time'. I said that was wrong and there was no response.
Today I did my part to be on time and be still for the CT scan and ONCE again there was an error. I do not trust the scan report because the radiologist was looking for breast cancer, which I don't have (praise God). I asked for a new radiology read with a different radiologist and I was given a phone number to call.
I see my new oncologist Friday and am scheduled for Taxol. He needs time to get to know my case but the wrong diagnosis on an order is absolutely not acceptable under any circumstances What the heck is going on where I get cancer care?
The 'wrong diagnosis' could have been written incorrectly by an assistant but how did that significant mistake go unnoticed by layers of professionals???? The radiologist was comparing today's scan to on in Feb 2022 and NOWHERE on that report or anywhere on my chart does it say I have breast cancer. I have ovarian cancer.
If I want any credible care I would have to move! I can't drive back and forth to Loveland (if I were to go to MD Anderson) from Englewood, it's too long. I am too tired to make that drive for each treatment, let alone other unexpected visits.
I cannot tolerate PARP inhibitors because they cause me serious bad side effects. Zejula was a terrible drug for me. I never should have agreed to try it.
I have no idea how fast cancer is growing because my previous team screwed up so badly, then punished me for getting angry about their mistake. I want more time for Taxol or try Gemzar again.
How am I supposed to feel? Am I going to get punished for being upset today? I ask anyone to be neutral about having the wrong diagnosis on the CT order and radiology report and that is tooooooooo much to ask of anyone. I need lots of prayers and can I please please please receive proper medical care?
I think my previous team should pay my bills and pay relocation costs to get better care at a reputable cancer center and pay my living expenses! What did I do to them to receive such bad care?
This blog is all I have. They are killing me.
I read today a shocking note written by my amazing palliative care nurse. She has been a beacon of hope amidst the nightmare that my gynecology oncologist of 6 years was willing to let me go and let me die. He activated a legal loophole/behavior agreement after I complained about the radiology error which has ALLOWED my cancer to spread untreated. A social worker refused to help me relax prior to that appointment becauae I was legitimately upset about the lethal medical reporting error. In other words only a living saint would not have been upset.
Jesus was abandoned by those he loved and I am keeping my heart with Jesus as best as I can humanly do, given that my gymonc was willing to abandon me while my cancer was advancing.
The palliative care nurse wrote (see photo) she would not be surprised if I died a year from March. Maybe her answer would have been that she would be surprised by my death within a year, had it not been for this collasal medical reporting mistake. My doctor must have been terrified that I was going to sue him so he was willing to let me die. One day you will see a photo of this insanity. I will black out his name.
God will handle this doctor's reputation. I ask for your prayers that I continue to ask Jesus to speak for me. I am begging for the bitterness to disappear, it is going to take time. I will be in confessions and adoration often because this abuse is so RAW. I need lots of prayers because sometimes I have wanted for God to just take me.
Why did my doctor hurt me?
I have PTSD from the river of medical abuses. I will voice my records with grace because I will not be silenced either.
Behavior agreements are too often used in a morally corrupt and criminal manner.
Please pray for all doctors who hurt their patients out of FEAR of being sued!
This is the weekend we honor the women who give birth, adopt, mother us and love us. We are forever connected to them, eternally bonded. I was hoping to get to Kansas and visit my mom's grave site. I deeply miss her, why? Because of her love. She knew me, not as much as Jesus knows me, but she knew my heart. I miss you mom, love you and know the day that God brings me home is the day I see you again! ❤️
This is also an historical moment for enwombed children to be lifted in joy, not burden. We as a society must do all we can to love mothers and enable them to nurture the child within. All human life deserves dignity at all stages of life, birth and death. Let's do more for Love, not hate.
I wrote a poem about a child, their life, their death and the great gift of God's eternal Love, Grace, Mercy and Forgiveness. May this inspire you to think more deeply about these tender members of the human race who have a purpose yet to be seen but given by Love and God himself. Love and Bless you!
Medical Error Patient Health Restoration and Protection Act
I want to start this post saying that I AM grateful for all of the good care that I have received over the years. Positive outcomes outweigh bad outcomes, BUT, permanent damage has happened to my body, mind and spirit as a result of medical injury. This cannot be ignored. A nurse is on trial for killing a patient because she was distracted, and gave the wrong medication. A nurse running to her side defended her saying that mistakes happen "every day" and that nobody would be a nurse if they weren't allowed to make mistakes. I don't agree at all with her attitude or her statement.
Would you buy a car from a factory where the workers said they make mistakes every day and that they are "ok" with it? NO! I can choose to buy a different car but I cannot choose to receive an alternative healthcare delivery method, I can't.
Medical errors have been swept under the rug for decades upon decades. A time of reckoning is upon this vital human service industry. Medical errors are like a cancer festering amongst the students, providers, patients and executives within the healthcare system. There is NO current patient pathway for restoration and NO pathway for restitution and correction for providers committing medical mistakes.
Medical mistakes or errors ARE an abuse against a patient when they continue to happen without any effort to remedy and avert the problem. People die or become permanently injured as a result. In order to fix a problem one must first acknowledge and APOLOGIZE. The ultimate goal of this ACT is not just patient and provider healing, but forgiveness.
I have felt like the poster child of medical errors since 2008. I have almost died several times and to this day regularly battle mistakes in health care delivery. This has tried my forgiving heart on an unbelievable level and my body is permanently damaged as a result of these errors. I have forgiven, but it takes a toll on me and everyone involved. I speak out and I say that I was injured, and nobody likes it.
The Healthcare Industry and teaching models need to change their attitude about patient care mistakes. Of course it's true that some mistakes (errors in the sensory system/perception of the problem at hand) will always be present because we are humans. What is NOT ok are errors in judgement or willful disregard for protocols designed to protect patients from injury. The system needs to change so that providers are Not Distracted. t
The healthcare providers are the only people who know what they need to stop this madness from continuing to happen. Not board members, not executives, not money managers and profit margin hawks, not the professors...but the workers. They need to be empowered to do a good, not good, but excellent job! People have been killed or permanently damaged because of this cancerous sore that has festered and grown to a point it may actually kill the healthcare delivery system we know today. Today is the day for change, not tomorrow!
Healthcare workers need to stand UP FOR their patients!!!!!!!! Patients are not the enemy! Workers need to stand UP to the SYSTEM that creates this toxic patient healthcare delivery environment and fight for what the patients need! They need to "be the change" because when their colleagues make mistakes, especially those that cause permanent damage or sadly kill, they are also effected. Everyone is touched by these errors. When patients are placed first everyone wins!
God's Grace has kept me alive and this is my time to speak up on behalf of all patients who are abused within the medical community. It's time to stop sweeping medical errors under the rug! Starting today each and every health care worker can make a choice to double check their assignments. They can do that. It starts with them. I have suffered so much spiritual, physical and emotional pain from medical injuries that I dare say I can bear no more! This is my time to speak out!
May God grant mercy upon those workers who are struggling to provide care to their patients and may He console and heal the bodies, minds and soul of the victims.
Essentials of Medical Error Patient Health Restoration and Protection Act (MEPHRPA) by Denise Archuleta:
