CDC Symptom Diary Card

Friday, September 14, 2012

Open Letter to Facebook

After you read the letter, please see the notes
 from my conversation with the sales department
 at Facebook.  

She was so nice.  I really appreciated her time.  

I don't have $50K.

Dear Mark Zuckerberg,

Here at "Turn Facebook Teal to Heal" have almost doubled our goal!  Men and women around the world are asking for Teal Facebook Pages in September in honor of Ovarian Cancer Awareness Month.

Below is a PSA from Joe Girardi of the Yankees, because his mom died of ovarian cancer.  
I have been researching the FB platform even more and find that the only place for a PSA is the sign in page.  Will you please consider linking this PSA to your sign in page and changing it's color to Teal?   

http://www.causes.com/causes/651059-teal-to-heal-turn-facebook-teal-in-september/actions/1678558


New York Yankees' Manager Joe Girardi speaks about losing his mother to Ovarian Cancer. He discusses the signs and symptoms of ovarian cancer. Together we can break the silence on ovarian cancer! Public Service Announcement by the National Ovarian Cancer Coalition - www.OVARIAN.org .  Published on Apr 5, 2012 by NOCCNational



On my blog you will also see a badge that links followers to the CDC, so that anyone can get materials about this deadly disease.  It kills 4 out of 5 women.  


I saw that Facebook is stories now, as part of it's platform.  I am so pleased to see that.  But those stories are not seen before someone signs in.

Please take this unique opportunity to demonstrate the goodwill efforts of Facebook to all individuals, both members and non-members, by linking this PSA to your sign in page and changing the color to Teal in September of 2012.

(This was emailed to Facebook sales and marketing departments on 09-13-12, one of many so far)
.......................................................................................................................................................
09-14-12

I just contacted the sales department by phone  800-608-1600 begin_of_the_skype_highlighting to ask if they are willing to post a PSA on their sign in page about ovarian cancer.  The representative was overly polite given she could not help me. 

I was told to create a FAN page and use my FAN page to raise awareness.  

I don't agree with that but I will work on one so that the same people who are my friends and petitioners and members of my cause page can "like" me and eventually spread the word.  They already know about ovarian cancer and want you to help us raise awareness.

My goal is to get the message out to people who have never heard of ovarian cancer.  There is no screening test.

  The best chance we have at a long survival is to detect it early.  It's a time bomb ticking away in our bodies and most doctors and gynecologists misdiagnose it.  Literally it's a sneaky bastard, a killer.

So I asked about advertising.  She said that if I could raise 50K dollars we could begin a conversation to do the following:

Turn Facebook's sign in page "TEAL"
Place a badge to the CDC  or PSA link for a Video
And state that this is ovarian cancer awareness month

So much money has already been spent on producing PSAs that are already available to be used.  It would cost Facebook next to nothing to change the color of one page to Teal and add the badge and blurb about ovarian cancer.  

Facebook has only recently started using their sign in page's premium real estate for advertising.  

I don't want to preach to the choir any more.  My friends already know about ovarian cancer.  

We are not a sea of teal yet.  We are a small but feisty group that suffers terribly the side effects of major abdominal surgeries to remove everything but the kitchen sink. Our voices are strong, but spread all over the world.  We are not concentrated in dense populations so we are hard to see.

Our grassroots efforts are making a huge difference, but we don't have time to wait for this message to grow in small stages.  We don't have a screening tool!   

I am asking Facebook to make an exception to the advertising policy and give back to the community that loves them by offering PSA's on their sign in page.  Do something good for the community and begin with our cause.

You will save many lives!

Thank you,
Denise Archuleta


Wednesday, September 12, 2012

People Magazine reports Kathy Bates has breast cancer

I am shocked.  A friend of mine (thank you Regina) sent me a note today that Kathy Bates has breast cancer.  People Magazine reported this today online.....

Here is the link to their article on our lovely and endearing Kathy Bates:

http://www.people.com/people/article/0,,20628972,00.html#disqus_thread

Dear Kathy Bates, I think you are so gracious and endearing, beautiful and talented.  Thank you for sharing your story with all of us.  May you heal in peace, fully and without suffering.

Peace and Blessings to you,

Denise


Sunday, September 09, 2012

Tastes Like Heaven

Sunday is a day of rest for most, at least I hope.  I hope you know that I have been working very hard over the past week or so to spread the word about the importance of learning more about ovarian cancer. I am contacting Facebook and will continue to do so regarding our important petition.  Now it's time to share something unique, something joyful.

Today is a day to tend to what brings us the little "happys" in life.  A day for giving thanks to God (in your own way) and to those around us to make the curves or our mouths go "up".  A time to be in awe of nature, of something artful and inspiring.  A day to stand near a creek or river and listen to the trickling sounds that soothe your heart.  A time to play with the children and laugh from deep inside your gut.  A moment to take time to call a long lost friend or your parents and see how they are doing.  Say hello to your neighbor and smile brightly.   Someone's grandparent probably has an incredible story that needs to be told, and you can be there to listen.

At the risk of creating an outcry, I want to share the cutest little video of my sweet kitty cat Marilyn.  She is my little angel.  She keeps me from feeling lonely and gives me someone to talk to.  She has the most adorable little kitty voice, not a classic "meow", but ....well....I can't describe it.

She literally hangs out with me all the time.  She is so tidy and girly.  She is just the sweetest gift from God.  I was looking for a cat back in January, really debating the whole idea.  What am I doing?  What if something happens to me, who will take care of her?  Do I really want that litter box?  Ha!

I saw her needing adoption from a foster family at that time, along with other beautiful cats, but didn't take action because I just wasn't ready.  Every day I kept saying to myself that I wanted a cat.  I couldn't stop thinking about it.  Finally a few months later I couldn't take it any more.  The apartment was empty, just me and furniture, etc.  No life!

So I was searching and I saw her again!  I scheduled a meeting with the foster parents and just fell in love with her.  She was meant for me.

Before you watch, I want to let you know I did research on roses and cats.  I found no actual proof that rose petals cause problems.  My Marilyn loves rose petals.  So here she is.  Enjoy.



Love,
Denise