CDC Symptom Diary Card

Sunday, September 02, 2012

Ovarian Cancer Feels Like This


From Wikipedia, the free encyclopedia

Prometheus depicted in a sculpture by Nicolas-Sébastien Adam, 1762 (Louvre)
Prometheus (GreekΠρομηθεύς) is a Titanculture hero, and trickster figure who in Greek mythology is credited with thecreation of man from clay and the theft of fire for human use, an act that enabled progress and civilization. He is known for his intelligence, and as a champion of mankind.[1]
The punishment of Prometheus as a consequence of the theft is a major theme of his mythology, and is a popular subject of both ancient and modern art. Zeus, king of the Olympian gods, sentenced the Titan to eternal torment for his transgression. The immortal Prometheus was bound to a rock, where each day an eagle, the emblem of Zeus, was sent to feed on his liver, only to have it grow back to be eaten again the next day. In some stories, Prometheus is freed at last by the hero Heracles (Hercules).

I post this image because this is what it feels like to have Ovarian Cancer. 
The irony is that Ovarian Cancer is also a trickster.  Our ovaries are necessary for life, without them, mankind would not be able to duplicate. We cannot feel our little gems.  They are protected.   As ovarian cancer grows, everything around the ovary is displaced, and that displacement is what causes our symptoms. Tricky little (expletive), isn't it!
Ask any woman who has been diagnosed with ovarian cancer and she will probably tell you that she had strange abdominal pain.  She may say that she had a poor appetite.  She may say that her doctor gave her antacids and to keep an eye on it, maybe it is IBS.  And then out of nowhere she has to go to the ER because the pain is so bad, she feels like she is going to die, and they do a CT scan.  The doctor says she needs surgery and results show ovarian cancer.  
Our surgery is radical, the chemo ravages through our bodies to kill the cancer, leaving behind permanent damage.  Often our abdomen becomes a permanent stomping ground for never ending pain and suffering.
Maybe find the time to go to http://www.whyteal.org/ and learn about it.  This month is Ovarian Cancer Awareness month and our color is Teal.  
I hope every woman learns more about it just so that they have a better say so in how their doctor listens to her concerns if sadly she has unexplained problems, and her inner voice says that something is wrong.
I love you all,
Denise

Saturday, September 01, 2012

Presidential Proclamation -- National Ovarian Cancer Awareness Month, 2012


Presidential Proclamation -- National Ovarian Cancer   Awareness Month, 2012


NATIONAL OVARIAN CANCER AWARENESS MONTH, 2012
BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
A PROCLAMATION
This year, thousands of American women will lose their lives to ovarian cancer.  They are mothers and daughters, sisters and grandmothers, community members and cherished friends -- and the absence they leave in our hearts will be deeply felt forever.  During National Ovarian Cancer Awareness Month, we honor those we have lost, show our support for women who bravely carry on the fight, and take action to lessen the tragic toll ovarian cancer takes on families across our Nation.
Sadly, women are all too often diagnosed with this disease when it has already reached an advanced stage.  Because early detection is the best defense against ovarian cancer, it is essential that women know the risk factors associated with the disease.  Women who are middle-aged or older, who have a family history of ovarian or breast cancer, or who have had certain cancers in the past are at increased risk of developing ovarian cancer.  Any woman who thinks she is at risk of ovarian cancer    or who experiences symptoms, including abdominal pain, pressure, or swelling -- should talk with her health care provider.  To learn more, visit www.Cancer.gov.
Ongoing progress in science and medicine is moving us forward in the battle against ovarian cancer, and my Administration remains committed to improving outcomes for women suffering from this devastating illness.  Through agencies across the Federal Government, we are continuing to invest in research that paves the way for a new generation of tests and treatments.  Through the Centers for Disease Control's Inside Knowledgecampaign, we are working to raise awareness about the signs and symptoms of ovarian cancer.  The Affordable Care Act already bans insurance companies from dropping a woman's coverage because she has ovarian cancer, and from placing lifetime or restrictive annual dollar limits on her coverage.  Beginning in 2014, the law will also prohibit insurers from denying coverage or charging higher premiums because a woman has ovarian cancer -- or any other pre-existing condition.
Ovarian cancer affects the lives of far too many women every year, and the tragedy it leaves in its wake reverberates in communities across our country.  This month, we stand with all those who have known the pain of ovarian cancer, and we rededicate ourselves to the pursuit of new and better ways to prevent, detect, and treat this devastating disease.
NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2012 as National Ovarian Cancer Awareness Month.  I call upon citizens, government agencies, organizations, health care providers, and research institutions to raise ovarian cancer awareness and continue helping Americans live longer, healthier lives.  I also urge women across our country to talk to their health care providers and learn more about this disease.
IN WITNESS WHEREOF, I have hereunto set my hand this thirty first day of August, in the year of our Lord two thousand twelve, and of the Independence of the United States of America the two hundred and thirty-seventh.
BARACK OBAMA

Thank you kind readers for receiving this important information:

Wednesday, August 29, 2012

Sign the Petition to turn Facebook Teal in September

http://www.causes.com/causes/651059-teal-to-heal-turn-facebook-teal-in-september/actions/1678558

Please link and sign this petition.  It is a petition to ask Facebook to turn their pages Teal in September.

Although Facebook historically has never publicly supported any cancer cause, now is the time.

I have desperately been hunting for a phone number, and none to be found.

I researched the EDGAR database http://www.sec.gov/cgi-bin/browse-edgar?company=Facebook&match=&CIK=&filenum=&State=&Country=&SIC=&owner=exclude&Find=Find+Companies&action=getcompany

Here are their public documents.  In their initial filings, they are listed as TheFacebook, Inc with a phone number of 914-646-8593. That number is no longer available.

The recent filings show an address of
1601 Willow Road
Menlo Park, CA  94025

650-543-4800  (editors note, I finally found correct number and called and left a message)

I searched online for the Seattle office location, and found the article referencing the new building.  I have sent the Seattle Facebook Page a message.  I have sent many messages to Mark Zuckerberg.

It is going to take much more effort here just to talk to any live person!  I need a wrecking ball to break down the communications barriers.

Please sign the petition or mail Facebook the petition on Teal paper to add your name to the cause.  We need to flood their offices with requests.

The deadline is just a few days from now and I will do what I can to find a local address.

I apologize, as I am not a professional marketing person, but with your help, I can keep going!!!!

I am in treatment right now, and family matters do take up time, but this is very important.  My life would not be facing such uncertainty if I had been aware of ovarian cancer several years ago.

Thousands of women suffer great pain during this cancer journey, and it can be less traumatic if caught in the early stages.  When caught in the early stages, the 5 year survival rate is 90% or more.

I am not taking donations.  We are asking for time, and that is more precious than dollars.  Your time is more valuable now than ever if you have cancer or any other chronic severe health condition.  Your time will help save the life of another.

It may cost Facebook a few pennies to reprogram the colors of their pages, and add a message and a link to raise awareness, but think of how much of an impact that could make....your loved one may be saved.

Little girls can get ovarian cancer.......so much needs to be done!

I know I am begging but I'm not too proud to beg.....and other organizations that are promoting the same thing, please amp up your requests!!!!!!!!!!!

Love,
Denise Archuleta