My mom puts other people first, especially people who work hard. That's how she hurt her tailbone in New York. She didn't want to make the cabbie wait, the traffic was scary and a nightmare. She was rushing to get in the cab........and whammo. The next morning she couldn't get out of bed. She couldn't even open the heavy hotel doors, and walk around by herself. Here we are on this fabulous trip to New York, and she is in pain. Heartbreaking.
The next day we were planning to go to some museums. She is an artist.......She missed her much desired trip to Museum Mile because of her desire to not make the cabbie wait. She spent our only total free day in complete pain and in the clinic. Aagh. I am still not over that ........just wishing I'd done something to prevent it............
We will find a way to do the trip, even if it is a virtual one.
She tipped the cabbie $20
She spent all day yesterday waiting for the wonderful ladies that help clean her home, which she reluctantly agreed to not too long ago. She is just not the type to have someone else clean her house. By 5:00 pm they still hadn't arrived. I was helping with dinner, because nothing appeals to her anymore. I asked her if I could call and ask them to come tomorrow. Her response "no, that may not fit into their schedule".
She has such a good heart. Her appointment went well today, thank you God.
I love you mom, love you sis.
I go by #Servivorgirl. Celebrating almost 14 years since diagnosis of stage IIIC ovarian cancer, recently restaged to IVB. My blog is called Nobody Has Ovarian Cancer because I felt like a nobody upon the eventual correct diagnosis. Being told multiple times that I was too young to have ovarian cancer, I did not receive the proper testing. I am so grateful to Him for all those who allow me to share my love, to those who love me and those who treat my illness. I praise Him always.
Friday, August 03, 2012
Ovarian Cancer National Alliance
We are coming up on September, Ovarian Cancer Awareness Month. Above is a beautiful stamp created by Amy Tedder, a 6 year Ovarian Cancer survivor. You can read more about her from the link below.
http://myemail.constantcontact.com/August-news-from-the-Ovarian-Cancer-National-Alliance.html?soid=1103664214012&aid=08nMv7XeHQE
In the past few weeks we learned about Wendy Schultz, wife of MSNBC host of the Ed Show, Ed Schultz. Wendy has had surgery and is receiving treatment for ovarian cancer. Our prayers and love and support go out to you Wendy and Ed.
Please watch the video, it is compelling and you can feel the love that Ed has for his dear wife.
http://www.huffingtonpost.com/2012/07/26/ed-schultz-wife-wendy-ovarian-cancer_n_1706873.html
Mom is doing so much better, yay. We are just doing all we can to be there for her so that she can get back to a sense of normalcy while we have some sunshine in Seattle. She has so many complications, yet she pushes on, no matter what. No matter the pain, the swelling, the fatigue, the sugar changes, or whatever tries to block her way. 'We love you mom.
I have my second treatment with Lipodox next Monday. Ugh, but it must be done. This last time around, the nausea was pretty bad. Overall though, I could breathe. No shortness of breath. That was so scary when on the carboplatin, so thankful that is gone. Today I am grateful for the Lipodox and will deal with the side effects, because I'm here to deal with the side effects I can say thank you to God.
I love you all!
Wednesday, July 25, 2012
Medications to treat Ovarian Cancer, returning to OC
Hello Family,
Last night I had a nightmare. One of my old managers from the 1990's was in my dream and in the dream I was crying because I was being harassed.
It was so strange. I was in a library that looked like a giant shopping mall. I kept running from section to section because I was being chased by her, literally being forced to move because I wasn't "allowed" to educate myself. I was forbidden to read or research information about my condition. I guess I was trying to find out more information about a situation I was in, and she didn't want me to know my rights.
It was like a game of hide and seek. She would find me and make me leave the area and I would sneak back in and be caught again. This happened over and over and over and over.
When I'm on chemo my dreams are always very colorful and detailed and full of strong messages. I always remember them in some way and often will continue the dream the next night.
I'm literally remembering this dream as if it actually happened.
I feel like it sums up a lot of life experiences for myself and so many others. We get bullied all throughout our lives on different levels. As kids, it's the bully who makes fun of you. As you age, it turns into an awkward work situation or fellow parent on the school board or landlord from hell.
We never really know though how significant these instances are until later in life. I've had slumlords make my life very difficult and complicated. I remember clearly the gal in school who gave me a hard time, changed me forever.
As a patient, I remember a few health professionals who could use a lesson in decency.
Maybe my dream was a summation of all those experiences of when I could have either stood up for myself or researched something just a little more and gave myself more protection. I didn't though, and when I did stand up, I always chose what seemed to be the "wrong" fight.
Now I am much much much better at choosing my battles. I am more careful not to poke the wrong bear. I still make mistakes, but I make them less often.
All else is forgiven and tomorrow there will be a new battle. Maybe I just needed a dream to collectively gather all of those moments in time into one event and just let it go.
Cancer is enough for now.
On a different note, I came across a list of possible medications to treat OC and thought it would be good to re-issue it, thank you WebMD.
I know I saw this several years ago, but was too overwhelmed to really consider anything other than what was recommended by my fabulous gyn-onc, Dr. G. I know I have been given the best chemo options considering my overall medical health. I really trust my doctor.
For those of you who are new to ovarian cancer, this list may be useful just so that you are aware of all the options.
My recurrence is turning out to last longer than I had hoped, as my new Lipodox treatment plan continues into November. I don't qualify for any trials because my medical condition is too complicated with having rheumatoid arthritis (RA). RA is an auto-immune disease that effects multiple systems in the body, not just the joints.
I feel fortunate that I have the Lipodox option and that SCCA http://www.seattlecca.org/ was able to obtain this important medication. The Doxil crisis sadly left many people without critical treatment. I AM so blessed.
Love you ................
Last night I had a nightmare. One of my old managers from the 1990's was in my dream and in the dream I was crying because I was being harassed.
It was so strange. I was in a library that looked like a giant shopping mall. I kept running from section to section because I was being chased by her, literally being forced to move because I wasn't "allowed" to educate myself. I was forbidden to read or research information about my condition. I guess I was trying to find out more information about a situation I was in, and she didn't want me to know my rights.
It was like a game of hide and seek. She would find me and make me leave the area and I would sneak back in and be caught again. This happened over and over and over and over.
When I'm on chemo my dreams are always very colorful and detailed and full of strong messages. I always remember them in some way and often will continue the dream the next night.
I'm literally remembering this dream as if it actually happened.
I feel like it sums up a lot of life experiences for myself and so many others. We get bullied all throughout our lives on different levels. As kids, it's the bully who makes fun of you. As you age, it turns into an awkward work situation or fellow parent on the school board or landlord from hell.
We never really know though how significant these instances are until later in life. I've had slumlords make my life very difficult and complicated. I remember clearly the gal in school who gave me a hard time, changed me forever.
As a patient, I remember a few health professionals who could use a lesson in decency.
Maybe my dream was a summation of all those experiences of when I could have either stood up for myself or researched something just a little more and gave myself more protection. I didn't though, and when I did stand up, I always chose what seemed to be the "wrong" fight.
Now I am much much much better at choosing my battles. I am more careful not to poke the wrong bear. I still make mistakes, but I make them less often.
All else is forgiven and tomorrow there will be a new battle. Maybe I just needed a dream to collectively gather all of those moments in time into one event and just let it go.
Cancer is enough for now.
On a different note, I came across a list of possible medications to treat OC and thought it would be good to re-issue it, thank you WebMD.
I know I saw this several years ago, but was too overwhelmed to really consider anything other than what was recommended by my fabulous gyn-onc, Dr. G. I know I have been given the best chemo options considering my overall medical health. I really trust my doctor.
For those of you who are new to ovarian cancer, this list may be useful just so that you are aware of all the options.
My recurrence is turning out to last longer than I had hoped, as my new Lipodox treatment plan continues into November. I don't qualify for any trials because my medical condition is too complicated with having rheumatoid arthritis (RA). RA is an auto-immune disease that effects multiple systems in the body, not just the joints.
I feel fortunate that I have the Lipodox option and that SCCA http://www.seattlecca.org/ was able to obtain this important medication. The Doxil crisis sadly left many people without critical treatment. I AM so blessed.
Love you ................
Considering taking medication to treat Ovarian Carcinoma? Below is a list of common medications used to treat or reduce the symptoms of Ovarian Carcinoma. Follow the links to read common uses, side effects, dosage details and read user reviews for the drugs listed below.
Your search for Ovarian Carcinoma returned the following treatments.
DRUG NAME | INDICATION | TYPE | USER REVIEWS |
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FIND A DRUG:
by name or medical condition or shape/color (Pill Identifier)
Monday, July 23, 2012
Aurora Memorial: We must make a change: National training program required prior to purchasing a gun of any kind.
http://www.nytimes.com/slideshow/2012/07/23/us/20120723_SHOOTING.html?smid=pl-share
My deepest condolences to the families of the victims, survivors and families of the survivors of the shooting in Aurora Colorado. My home state and America and people around the world mourn your loss. God Speed and Peace Be with You.
I propose that all people who purchase guns be required to have completed a training course prior to making the purchase. This should be a Federal requirement, and a national registry of all people who have taken the gun safety course, gun ownership and current residence must be streamlined into one system.
Nobody needs to buy a gun in a hurry and nobody should be able to buy a gun without prior training on safe operation, handling and ethical and legal use of their weapon.
If the shooter would have been required to get to physically present himself to a training program operator, pass an exam and get a license that is certified and notarized, he never would have passed.
I am not a fan of taking away our right to bear arms, but owning an assault rifle is ridiculous.
We need a license to drive a car. We need a license to operate machinery. In this country, you must pass a test to be a notary public. Guys who work construction can't operate a forklift without going through certification for crying out loud....................
YET, in this country we allow people to buy weapons without knowing that they are trained on safe and lawful use.
The rigor and planning and patience and good honor necessary to take the time to attend and pass these courses would improve safe use of guns around the country and also would be a great deterrent, making it harder for criminals to buy weapons. How many children are injured because stupid adults leave guns loaded in the house, accessible to curious little people? How many people hurt themselves each year because they don't know what they are doing?
I am not a fan of hunting, I can't even kill a spider. I take them outside. But I do understand that some people hunt and that we have a constitutional right to own a weapon to help us protect ourselves. To continue to allow people to buy weapons and ammunition without proof that they have been trained on that weapon is plain irresponsible.
Please share if you support this idea.
We must change the ease of access to guns and background checks are not enough!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Sunday, July 22, 2012
Marsha Rivkin Seattle SummeRun and Walk for Ovarian Cancer by Swedish
Race Details for Swedish SummeRun
Date: Sunday July 22, 2012
Distance: 5k Run & 5k Walk
Day of Event Timeline:
- Registration begins at the corner of Marion & Minor 6:30 a.m
- Aerobics warm up 7:45 a.m.
- 5k Run/Walk 8:15 a.m.
- Surviving Ovarian Cancer Tribute/ Awards Ceremony 9:30 a.m.
Location: All running and walking events will start and finish at the corner of Madison and Minor - Download driving directions (pdf) or check your bus options using the Metro Transit Trip Planner.
Registration: $30 per person (through July 18), $35 per person day-of-race. Cash, check, and credit card accepted.
Register online: Whether your choose to run or walk the 5k, select the appropriate registration option on the SummeRun homepage. On-line registration available until 5pm on Wednesday July 18, 2012.
Register by mail: Please download the registration form (pdf) and return with payment to: Swedish Medical Center Foundation, Attn: SummeRun, PO Box 3976, Seattle, WA 98124-3976. Mail-in registrations must be received by July 13, 2012.
In-person registration: You may register in person from June 20, 2012 until 5 pm on July 17, 2012 at the following locations:
- Super Jock 'n Jill (Greenlake) 206.522.7711
- Foot Zone (Bellevue) 425.462.7463
- Rivkin Center (Swedish Medical Center/First Hill) 206.215.6200
Parking: Free until 1 pm for all participants at the following location: 1101 Madison St. garage (enter on Marion via Boren). Please carpool when possible and allow extra time to enter and exit the parking garage.
Festivities & Awards: After the run/walk, you are invited to stay and enjoy refreshments, live music, an award ceremony for top finishers, and a tribute to ovarian cancer survivors.
Have questions? See our Frequently-Asked-Questionspage!
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