It was one of those clinic days for me today. I had the opportunity to deal with both RA and ovarian cancer maintenance, spending most of the day at the hospital.
Actually it was great to revisit my rheumatologist, as she just returned from maternity leave. She spent good quality time with me. I received new xrays of hands and feet, bone density scan ordered, OT ordered to get a splint for my ulnar deviation. I wonder how much radiation I will have received in the past 18 months, too much probably.
Had port flushed and labs drawn. For some reason my oncologist ordered another CA 125. I just had one a month ago, and it was 10. I forgot if they were going to draw it once per month or every 3 months. Chemo brain again.
I painted my finger and toe nails teal. Everyone loves the color and it is a great conversation starter for ovarian cancer awareness. It really is. Plus, everyone has liked the "blue" coloring. I'm happy that I have taken this step to be an advocate, at least in a subtle way.
I want to do more, but have no resources. I'm teetering on a few ideas, but have not really settled yet. I am still walking in a bit of limbo, uncertain of the course of my cancer, decision-making has been a chore. But it's getting better.
Need to apply for SSI this week, money is running out. Have not heard from voc rehab yet, hope they tell me soon if they can help me or not.
This is the point where having a rich husband would come in handy, ha......oh well.
Be Love and God Bless
I go by #Servivorgirl. Celebrating almost 14 years since diagnosis of stage IIIC ovarian cancer, recently restaged to IVB. My blog is called Nobody Has Ovarian Cancer because I felt like a nobody upon the eventual correct diagnosis. Being told multiple times that I was too young to have ovarian cancer, I did not receive the proper testing. I am so grateful to Him for all those who allow me to share my love, to those who love me and those who treat my illness. I praise Him always.
Tuesday, October 19, 2010
Sunday, October 17, 2010
God Bless Fightgirlandi The Dash
This poem was posted or written by a woman in my online ovarian cancer support group. Her online name is "Fightgirlandi". She was diagnosed with OC in August 2009 and passed away a few days ago. I am posting her poem to help all of us who are graced with the ability to breathe fresh air today. We are gifted with life for now and maybe we can find a way to make our lives better for those around us.
God Bless you Andi.
The Dash
• By fightgirlandi
• Posted January 27, 2010 at 9:41 am •
• Shared with the public
I read of a man who stood to speak,
At the funeral of a friend.
He referred to the dates on her tombstone
From beginning to the end.
He noted that first came the date of her birth
And spoke the following with tears.
But he said what mattered most of all,
Was the dash in between tho---se years.
For the dash represents, all the time
That she spent alive on earth.
And how only those who loved her
Know what that little line is worth.
For it matters not, how much we own;
The cars, the house, the cash,
What matters most is how we live and love
And how we spend our dash.
So think about this long and hard.
Are there things you'd like to change?
For you never know how much time is left,
That can still be rearranged.
If we could just slow down enough,
To consider what is true and real.
And always try to understand,
The way other people feel.
And be less quick to anger,
And show appreciation more,
And love the people in our lives
Like we've never loved before.
If we treat each other with respect,
And more often wear a smile
Remembering that this special dash
Might only last a little while.
So, when your eulogy is being read,
With your life's actions to rehash
Would you be proud of the things they say
And how your spent your dash?
Saturday, October 16, 2010
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