Resources for our teal sisters, can you help?

I am a proud member of the Inspire.com community, a resource that brings people together.  Our ovarian group is in need of information about all resources that could help some of our sisters in need.  Although most of our sisters have loving family to support them or help during this crisis, many do not.  I was so blessed to have my family help me and cannot image going through this alone.


If you know of anything, local or otherwise, please send me information and I can give it to the group.


The hard part about using resources is first locating them, organizing them and then all the paperwork to apply for help.  Many ladies are in need.  We can do more.


Thank you followers...................


Resources from simple searches.............................

http://copingmag.com/cwc/index.php/resources/new_resources

http://www.cancersupportcommunity.org/mm/Learn-About/cancertype/Ovarian-Can cer/Resources-- 
http://www.ovariancancer.org/about-ovarian-cancer/introduction/

http://www.colo-ovariancancer.org/cancer_resources

http://www.cancerlinksusa.com/ovary/index.asp

http://www.northshorelij.com/NSLIJ/Cancer+Resources+on+the+Web_CI

http://www.michigancancer.org/Resources/FinancialResources.cfm

http://www.ontopofcancer.org/ovarian_cancer_financial_insurance_legal_drug. php

http://carycancercenter.org/PatientSupport/FinancialResources.aspx

http://ovariancancer.com/app/index.php?pid=11

http://www.ocao.org/partner_resources.aspx

http://www.facingourrisk.org/info_research/finding-health-care/financial-he lp/index.php

http://www.mfocf.com/

http://ovariancancer.about.com/od/livingwithcancer/a/ovca_assistance.htm

http://www.colo-ovariancancer.org/financial-resources

http://www.cancerlinksusa.com/financial_aid.htm

https://www.navigatingcancer.com/?ref=header

http://healthinfoispower.wordpress.com/ovarian-cancer-resources/

http://www.cancerindex.org/clinks3o.htm

http://www.health.ny.gov/diseases/cancer/ovarian/resources/groups.htm

http://www.ovationsforthecure.org/aware/aware_resources.php

http://www.sharecancersupport.org/

http://www.cancerindex.org/clinks3o.htm

http://www.mylifeline.org/

http://www.patientresource.net/?gclid=CIeBmcqrwq0CFcoaQgod-E4E-w

http://www.cancer.org/cancer/ovariancancer/index?gclid=CPe6mr-rwq0CFQR5hwod VwOn_g

http://connect.caringbridge.org/gp/cancer_dual?g=GoogleP&an=Cancer+Support+ Free&k=cancer%20support%20groups&gclid=CIeuor2rwq0CFRRZhwodUB5NAw

http://www.seattlecca.org/diseases/ovarian-cancer-resources.cfm

http://www.medscape.com/resource/ovarian-cancer

http://www.onconurse.com/factsheets/ovarian.html

http://www.ovarian-news.org/resources.html

http://www.cancer.gov/cancertopics/types/ovarian

http://www.cancercare.org/diagnosis/ovarian_cancer

http://cancerhopenetwork.org/index.php?page=findamatch&gclid=CMj3k4urwq0CFc YbQgoddTY3Ag

http://www.cancerandcareers.org/en

http://www.cancerlifeline.org/

http://www.dshs.wa.gov/dvr/Default.aspx

http://www.marsharivkin.org/

http://www.needhelppayingbills.com/index.html

https://livestrong-intake-form.heroku.com/page/1/

http://cancersensibilityfoundation.org/

http://beingcancer.net/

http://www.cancercopayrelief.org/


Maybe one of these will make a big difference for each of us. Peace and Blessings. Love, Denise

Happy New Year

I am listening quietly to the fireworks off in the distance.  I have no other noise in the background and it's so peaceful.  It is 12:47 am on January 1, 2012.  WOW

I think about you all the time, my loyal followers, who keep an interest in my progress.  I am so humbled.

You can survive ovarian cancer.  

What I had learned this past 2011 was that we need to push beyond our comfort zone, even when it hurts and even when we don't agree, because we must keep moving forward.  We must never stop moving forward. 

Never ever ever.

2011 was a very challenging year because this was the year that I had to move beyond the "cuddle zone" and get my life started again.  The physical pains, cognitive voids and emotional fears and hot zones are here to stay, but my love for God and my family grows stronger every day.

I have total and complete faith that what is, is as it should be.  I am here in this spot at this time.  For now.

I never would have made it through my valleys if I had been denied somehow the honor of having my blogger family support.  You are my link to share my innermost feelings, fears, joys and hopes.  My heart is filled with joy.

Thank you for your loyalty and care.

May God bring you deep joy, prosperity and health in 2012.

Keep your faith and grab onto hope with all your might.

Love, 

Denise

Oh Christmas Tree.........

My Teal Starred Christmas Tree is literally my little work of art.  I had no desire to get a fake tree and the price of a real tree was a wee bit over the limit this year.  I am in love with bamboo and came up with a crazy idea to get some red colored bamboo and create my own tree. Up at the top is a Teal star, it glitters and makes me smile.  The lights in the center flicker, and it resembles a heart, beating with joy.


My favorite holiday is really Christmas.  I love I love I love Christmas.  I love the LOVE that sort of lingers in the atmosphere.  I'm not going to rattle on and on about why do we focus on doing good deeds just during the holidays, when it needs to be every day.......I just feel like talking a bit.


Like most people, my family is scattered from here to there and we will be celebrating Christmas several times this year.  I remember the times long ago, maybe life was much simpler and less frenzied.  Our family, like most, has it's share of changes and griefs, and every year it seems it gets harder and harder to see everyone and do all the things you want because we have less time.  I just want to shut down for a few weeks and feel the grace of LOVE, be Love, and Rejoice in the coming of the Lord.


Oh well, that's me.  If nothing else, a daily siesta to take in the magic would be marvelous.

I do have something on my list this year, besides world peace and a cure for cancer.  It has to do with the homeless.  My heart aches always when I see that a person has no shelter.  How can this be?


Please send up a prayer for them.  Pray that someone in their family thinks of them and tries to find them. Pray that they find their way home.  Pray that they get the medical attention they need and that they can find a home. It takes an incredible amount of resources to bring anyone from homelessness to working and living a decent life.  But it's possible. These lost souls have someone who loves them who can do something to help.  If you have some food or a way to help them find shelter, please don't be afraid to help.  


I always give what I can when I see a homeless person.  They are so alone, especially at this time of year.  


I am so thankful to God to be present this year, 2011.  I am thankful to God for granting me health care, and for answering prayers for others in my family.  Our family has been hit pretty hard this year with medical challenges, and we need a break.  Thank you God.


I want to honor all of you who take a moment to listen every now and then, to tell you that I pray, in this time of Holiness, no matter your faith or beliefs, that you are blessed with health, security, love and hope. 


Peace and Blessings to each of you this Holy Season.


Love,
Denise

Thomas Merton Prayer

THOMAS MERTON (1915-1968)

The Merton Prayer In Thoughts in Solitude, Part Two, Chapter II consists of fifteen lines that have become known as "the Merton Prayer." MY LORD GOD, I have no idea where I am going. I do not see the road ahead of me. I cannot know for certain where it will end. Nor do I really know myself, and the fact that I think I am following your will does not mean that I am actually doing so. But I believe that the desire to please you does in fact please you. And I hope I have that desire in all that I am doing. I hope that I will never do anything apart from that desire. And I know that if I do this you will lead me by the right road, though I may know nothing about it. Therefore I will trust you always though I may seem to be lost and in the shadow of death. I will not fear, for you are ever with me, and you will never leave me to face my perils alone. - Thomas Merton, "Thoughts in Solitude" © Abbey of Gethsemani Thomas Merton came to me in the form of an educational booklet at the SCCA.  On a day when I needed help to know that I was moving in the right direction, far from perfect, and just needing to feel love, this prayer was sent to me.  It resonates with me and I think with most people.   Faith does not present itself as a provable absolute, but it does present as a deep sense of knowing we are accountable to more than just ourselves. His parents died of cancer and he struggled to find God.  I ask you to read a bit about him and pray that as this Christmas Season continues that you find more peace and faith in your heart.   http://www.mertoninstitute.org/aboutThomasMerton/tabid/57/Default.aspx

"When Cancer Hits Home" by Dr. Patrick Maguire

"When Cancer Hits Home" by Dr. Patrick Maguire

Hello to my blogger family. I hope all is well and that the sun shines brightly in your heart today.

I wanted to share with you a wonderful resource that helps people navigate the minefields of cancer-land.  It's called "When Cancer Hits Home" by Dr. Patrick Maguire.  I was honored to have had the opportunity to ask Dr. Maguire a few questions about Ovarian Cancer.

Dr. Maguire's book is detailed and yet broad enough to include information on many forms of cancer. All of us are damaged by cancer. Either we have it or love someone who has or is battling cancer.  Hopefully we are looking in the mirror and saying we beat it, but sadly that is not always the case.

When I was diagnosed with ovarian cancer, research was frightening. My family and I were thrown into research mode and it was very stressful.  Searching within the internet, contacting cancer resource centers, helping me ask questions.  I was constantly on the computer.  When I went to my local library there was only ONE book on ovarian cancer! We were overrun, beaten and confused by hunting for reliable and accurate, and mostly hopeful information.

"When Cancer Hits Home" provides a much needed guide as we enter this deep and often dark path towards treatment.

Here are the questions I had asked with the help of his publisher.

 Thank you Dr. Maguire for taking time to share your thoughts and expertise with me in the hopes that others can benefit from your work and your book.  

Peace

1.  Is Dr. Maguire willing to tell us details about current medical training for PCPs on Ovarian Cancer?  What kind of training do our medical students receive?

Most medical students' training in oncology is limited overall. Generally, third and fourth year med students learn from patients who have cancer during their internal medicine, surgical, and sometimes ob/gyn rotations. At major medical centers, students may choose an elective experience in medical, radiation, or surgical oncology including gyn onc. Interactions with patients who have ovarian cancer would be limited to these experiences for the most part. Since most primary care physicians are trained in internal medicine and family practice, their knowledge base and experience with ovarian cancer would also be limited. Most general gynecologists should have at least basic knowledge of ovarian cancer and interacting with patients in this regard, since they spend time during residency training specifically with gynecologic oncologists treating female cancers.  

2.  The trend seems to be to eventually divert gynecological follow-up back to a regular OBGYN when an OC survivor is in remission.  What is Dr. Maguire's position on this trend? 

Because ovarian cancer is generally found when advanced and has high risk of recurring/returning, immediate follow-up for at least the first few years should be with a gyn oncologist rather than general gynecologist in my opinion. When likelihood of cancer returning starts to decrease after few years, it's not unreasonable for patients to change their follow-up care back to their general gynecologist if more convenient and they are comfortable with gynecologists'  handling of their survivorship plan. 

3.  How can we teach family members and caregivers and even doctors and social workers about the chronic side effects of TAH-BSO and chemo? (total abdominal hysterectomy, bilateral salpingo-oopherectomy)

Because ovarian cancer is both less common and more deadly than breast cancer, for instance, general medical providers as well as the public have less understanding of the disease, its treatment, and potential long-term side effects. Patients, their families, and other advocates will need to continue to be vocal in this regard to spread the word and teach others (& get more research dollars for the cause!).

4. Does he recommend clinical trials for women who are in remission? 

I am a vocal proponent of clinical trials in general, because I firmly believe they're the best way to rapidly advance our understanding of cancer, its treatment, and move towards a cure. While most clinical trials are geared toward improving methods of treatment, there are many "symptom management" trials open for cancer survivors that can be quite beneficial. I usually tell my patients who are candidates for a clinical trial that "it may help you, and will definitely help future patients."

5.  How does a woman with ovarian cancer know she has a good gynecological oncologist?  What are the signs? 

In When Cancer Hits Home as well as my new eBooks, Empowered Against Breast Cancer and Empowered Against Prostate Cancer, I discuss the "Three C's of a Good Cancer Doctor." They are competence, compassion, and communication. Even gyn onc surgeons need to have all three C's to rate as good doctors in my book!  

6.  Any other advice? 

Raising awareness about ovarian cancer is critical because in cancer research, as in many aspects of life, "the squeaky wheel often gets the grease." It's no coincidence that dramatic advances in breast cancer have occurred during the past several decades of excellent funding of laboratory research, clinical trials, etc. While potentially more challenging for ovarian cancer, I'd like to see more rapid advancement of less toxic treatment options and an effective screening test for the disease. You are advancing that cause right now, which is very valuable!

Parick Maguire, MD

http://www.amazon.com/dp/0615391117/ref=rdr_ext_tmb

( I do not receive any payments from this link, I am just sharing it for your benefit in case you want to buy the book............Denise  Peace, Love  and Blessings to all)