It's the Friday after, and I am so happy. I was able to eat portions of all the meal and not hurt too much today. The hardest part about today is the withdrawl from spending time with mom, Mandy, Patrick, Laria and Addie. We shared laughter and just seemed to have a good time, so unlike last year. Not to dwell on the past, but from what I can remember about last year, I felt muted and was in a lot of pain. I was in the throws of chemo, with one hospitalized treatment scheduled for the day after Thanksgiving.
This year, the time spent with family was fully enjoyed. My poor little niece was sick, but she seemed to be coping well enough. Those girls are full of so much enthusiasm and thirsty to please, smile and learn.
We all chipped in to make the dinner, and it was scrumptious. I am truly grateful to God for giving me this day and another chance to enjoy the holiday season.
My printer arrived, so this weekend I'll set it up. Next week is time to get back with voc rehab, they never contacted me.
I spent most of the day thinking about what I will leave behind for people to remember me by, whenever my time comes. Not in a depressing sad way, but in an inspirational way. I don't want people to remember me as a weak person who couldn't get back on her feet...........but what do I choose to do here?
I was thinking that as an Aunt, I have a great opportunity to show so much more love, support, participation, and examples. I just adore all my nieces and nephew so much.
I need them to see that I can be normal, so I do need to get back to work on some level. I also love being here with mom. I really do. She does not need me here, I need her more still. I am totally afraid that if I move out, I will get really depressed and lonely. What if something happens to her? I get a little overly worried about those kinds of things if I think too far ahead. That's why it's better for me to make short term plans right now.......like a week or so at a time.
Want to go with the family to see the Picasso Exhibition. AND I need to get a turtle in the kiln (over the summer my brother's children and he came to visit and the children made a turtle out of clay). In Seattle, it's no easy task to get clay fired, but I must do it..........
Well, lots of little things to take care of and praying for little Laria to be better soon. Oh and also my Aunt Kathy had good test results with her biopsy. We are all so grateful to that and thank you for your prayers.
Be well and God Bless. Happy Thanksgiving.
I go by #Servivorgirl. Celebrating almost 14 years since diagnosis of stage IIIC ovarian cancer, recently restaged to IVB. My blog is called Nobody Has Ovarian Cancer because I felt like a nobody upon the eventual correct diagnosis. Being told multiple times that I was too young to have ovarian cancer, I did not receive the proper testing. I am so grateful to Him for all those who allow me to share my love, to those who love me and those who treat my illness. I praise Him always.
Friday, November 26, 2010
Tuesday, November 23, 2010
Friday, November 19, 2010
CA 125 test and neutropenia
Hello all from Seattle. Rainy and cold, per usual for this time of year. Have any of you ever been so overwhelmed that you felt suicidal? I don't feel suicidal, but one of my online support groups has a member who knows someone who is, and she has cancer, and it's in remission ( per discussion). This situation was very upsetting to some peope in the group, and I don't think the suicidal person should be attacked.
How do you feel about a cancer patient being suicidal? Do you feel compassion? Do you feel anger towards her for not fighting hard to live her life to the fullest? Hmmmmmmmmmmm Something to think about.
Had a blood test (monthly test) at the cancer center today. I do not yet know the results of the golden CA125, but hopefully will have a number on Monday. Cholesterol is great but white counts dangerously low. It's .5. Ideally it would be 4. My condition is a status such that if I get a fever I must go to the emergency room, immediately. This problem will be with me for the rest of my life. I seem to be destined to live as "bubble girl".
This may partly explain why I've been sleeping 12 hours per day, solid sleep.
Thanks to God and my doctor and my insurance, I will get a neulasta shot tomorrow and I'll be OK for a few months. In a few months, the number will bottom out again, and I'll have to take another $7K shot.
How do you feel about my neulasta costing $7K?
I may need to do some fundraisning next year...........Have a great weekend. Please also pray for my Aunt Kathy. She had a breast biopsy today. Let's hope the lump is nothing. I'll keep you posted.
God Bless and Be Love
Denise
How do you feel about a cancer patient being suicidal? Do you feel compassion? Do you feel anger towards her for not fighting hard to live her life to the fullest? Hmmmmmmmmmmm Something to think about.
Had a blood test (monthly test) at the cancer center today. I do not yet know the results of the golden CA125, but hopefully will have a number on Monday. Cholesterol is great but white counts dangerously low. It's .5. Ideally it would be 4. My condition is a status such that if I get a fever I must go to the emergency room, immediately. This problem will be with me for the rest of my life. I seem to be destined to live as "bubble girl".
This may partly explain why I've been sleeping 12 hours per day, solid sleep.
Thanks to God and my doctor and my insurance, I will get a neulasta shot tomorrow and I'll be OK for a few months. In a few months, the number will bottom out again, and I'll have to take another $7K shot.
How do you feel about my neulasta costing $7K?
I may need to do some fundraisning next year...........Have a great weekend. Please also pray for my Aunt Kathy. She had a breast biopsy today. Let's hope the lump is nothing. I'll keep you posted.
God Bless and Be Love
Denise
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