CDC Symptom Diary Card

Monday, April 11, 2011

CA 125 and chemobrain

Well, to start off with the good news, I received copies of my labs and my CA125 is 8!  I am so so so happy, I almost feel bad about.  There are so many OC sisters struggling right now with rising levels, recurrences, and in the midst of treatment, and I don't want to gloat.  I just want to mention it so that you all can see that there is hope a year after chemo ends.  Thank you God.

Although there is no guarantee that my level will stay low, I FEEL stronger and more confident that now is the time for me to do something that will make a difference.  I have some fundraisning and awareness ideas for the Seattle area, and I'm awaiting the completion of some brainstorming sessions before I share. I've spoken with a local cancer support group and am awaiting their response. I can't do it alone, but I think my ideas are unique and valuable opportunities for the Seattle area.

Chemobrain is one of three enemies right now. 
Chemobrain, abdominal MAYHEM and rheumatoid arthritis are always crashing my party.

As you know I received bad news on my aptitude testing.  I am scheduled to see a neuropsyciatrist next week (or is it neuropsychologist) for a major battery of testing.  We'll see.

They are trying to figure out why there was such a descrepency between my verbal and math and abstract thinking.  Do I really want to know how mushy my brain is?  Or is this the start of something good?  I think overall if I know my strengths and weakness, I won't start down the wrong road when it comes to work.  AND, I can target my mental rehabilitation better.

My testing also shows I want to remain isolated.  The only thing is, a big huge reason I want to stay away from crowds is that I have a weak immune system. I think that detail is not clarified in the psychological testing, so it looks like I am a complete hermit.  I tend to be a homebody, but I did used to have a life before my chronically weak immune system reared it's ugly head.  Oh well, what can I do?

My WBC/and neutrophils are currently below normal, so I am susceptible to bacteria and viruses.  THAT is why I don't go out much.  I'll try to explain that to the tester, but we'll see.

He said that there's nothing more I can do to prepare for it, just be ready.  To tell you the truth, I'm nervous.

I know I have memory problems.  I forget things all the time, and as I've said before, my personality is different.  I feel almost like a child, weird.  I just want to PLAY.

Can I get a job where I play all day??????  Ha, that would be true joy. 

I was so happy to go to church last evening and have an opportunity to pray deeply for my family, friends, doctors, OC sisters and other friends with cancer who are in pain.  I pray for you every day.

Thanks for taking time to check in.  I'll send a note about how the testing session goes.  I haven't a clue as to when I'll get the results.

By the way, after the testing, Dept of Voc Rehab plans to put me in a community based job setting to see how I actually do at "work".  Nervous about that too, but I need it. 

Peace and God's Blessings to you.



  1. This was a complete day-maker. Congratulations Denise on your amazing news! :-D

  2. Great CA-125 number!
    How did you find out about the neuropsychiatrist? I have had major issues lately with chemobrain. I can't write enough lists. I still forget to do things or when things are happening or what the names of things are . It is starting to not be funny that my family finishes so many of my thoughts for me. it is very frustrating.

  3. I'm so glad to hear about the CA125 levels - don't feel bad about that! It's wonderful news. I love the recent addition of your picture at the top of the blog - you are absolutely lovely!

  4. Ohhh, definitely "Congrats" on the low CA-125!

  5. Dear sisters,

    Wow, huge hug back to you ladies. Very humbling to know you care. God Bless


Thank you for giving to me your precious time. I look forward to what you have to say. Peace and Blessings, Always.