CDC Symptom Diary Card

Tuesday, October 09, 2012

Danny DeVito and Crew Speak Out for Prop 37, GMO Labeling | Common Dreams

We know not the effect of genetically engineered foods on disease, but common sense will tell you that it can't be good.  I don't want Monsanto dictating what I feed my body, do you?

Danny DeVito and Crew Speak Out for Prop 37, GMO Labeling | Common Dreams



Danny DeVito and Crew Speak Out for Prop 37, GMO Labeling

In November, Californians will vote on Prop 37 requiring that GE foods be labeled. Just as labels list fat, sodium and sugar, labels should tell the buyer whether or not the product includes genetically engineered ingredients.
Unfortunately, major corporations like Monsanto are pouring billions of dollars into this election in order to confuse voters, and protect their bottom line.
Sign the pledge here if you plan to vote YES on Prop 37 and support the labeling of genetically engineered foods in California.
Here also is an interesting article published in 2010 by http://www.farmaid.org/site/apps/nlnet/content2.aspx?c=qlI5IhNVJsE&b=2723877&ct=8939681&notoc=1     
"With the power to own and patent genetics, seed companies can demand even more control over the market as a whole. The seed industry has suffered enormous concentration of power in the past few decades, with at least 200 independent seed companies exiting the market in the last fifteen years and four companies now controlling over 50% of the market. This consolidation means farmers have far fewer options for seed varieties. Meanwhile, farmers have seen the sharpest rise in seed prices during the period in which GE crops rose in prominence.[13]
In this sense, the deregulation of new GE varieties comes as a slap in the face to the farmers and eaters who put their trust in the USDA and Department of Justice as they examined antitrust abuses in our food system this past year, including specific investigations into Monsanto and the seed industry. The newest wave of GE products will only further corporate control over our food supply, putting the interests of corporations far before the needs of farmers and eaters.
The bottom line? 
Surely, this is a lot to take in. Genetic engineering is a complicated topic, with a broad set of consequences for our society. There are many questions left unanswered about how GE will impact farmers and eaters, and even less clarity about how these impacts will be managed.
Until our regulatory system and the biotech companies themselves properly address the risks inherent in GE crops, farmers and eaters have a right to reject them. Releasing GE crops into the fields without mitigating their risks is gambling with our health, our environment and livelihoods of family farmers."

Saturday, October 06, 2012

"Landslide" by Stevie Nicks, such a beautiful song.

A few months ago my mom was in the hospital for almost an entire month.  She is doing well again, thanks be to God.  I heard this song one day as I was pulling out of the hospital's parking garage, and lost it.

Now when I hear this song, I realize I cannot handle the seasons of my life, but I will do so anyway.

I play this as a tribute to all of our parents and to those who have died, who have suffered in pain.  




Sunday, September 30, 2012

She said, "This is mom" after I handed her the card


Yesterday was a big day for us in the Teal Four Square Flash Mob community.  With the Facebook campaign falling on deaf ears I needed to do something else to help raise awareness of ovarian cancer.  That is how this whole Four Square Flash Mob thing started.  I imagined a crowd of people dressed in beautiful teal, crossing an intersection over and over, calling out about our "gems" and giving people symptom cards.  I am a nut, I know.  A little much and, well, different.  Let's just say that I am strangely happy that it wasn't a mob in downtown Seattle yesterday, but  instead just me and my little basket of cards, talking one on one with other women.

As I was leaving my apartment yesterday I still had not chosen my location. With all of my sales and marketing history (not professional that is) I would say I failed miserably in terms of planning.  Oh well.   But, that may have also been a good thing.  I hadn't done anything like this in a very very long time.  I am a shy person and for me to go out and talk to strangers is challenging.  Always has been.

So I got in my car and just started driving.  The air was cool, a little cloudy, and really I had no clue what was happening anywhere.  I thought, well I can go to Pikes Market, that would be crowded.  Then I thought, maybe by South Lake Union, so beautiful around the lake, surely I will find lots of people there.  Then I thought about Phinney Ridge, a little neighborhood with lots of shops.  Then Fremont, then Golden Gardens park by the sound.  I thought about Greenlake too, a little lake between Phinney and Wallingford.

So first I drove to Phinney Ridge and it didn't feel "right".  I kept sensing this need to go to Greenlake, so that's where I went.

On the west side of the lake I could see the regular view, people walking and running along the edge, as usual.  I decided that I should go to the eastern side of the lake, where the food stand and boat rentals are,  an area more concentrated with people. If you have ever driven anywhere in Seattle you know that you can't really see what's around the corner.  That's how it is driving around the lake, crazy.

As I drove around towards the eastern side and passed the tennis courts suddenly there appeared an area with a bunch of tents and balloons.  I saw a huge stage and thought, wow, just exactly the place to be. Perfection.

It took forever for me to find a place to park.  Finallly I found a little spot with 45 minute parking in front of Jodee's Desserts.  Yum.  I scurried my buns to the park, teal balloons and basket in hand, ready to talk to the world about ovarian cancer.

When I got there, I saw that the event was for the Light the Night Walk, http://www.lightthenight.org/. It's a walk to benefit the Leukemia and Lymphoma Society. People were lined up to register, red and gold balloons were everywhere and you could see people forming their teams.  It was just a really nice event.  

I got permission from the people at the information booth, who were "in charge".  I want to say thank you so much for allowing me to hand out my cards at this special event. It felt really good to give out the cards because somewhere along the line, they will help.  I met some really nice people.

One woman stands out.  She and her sister were with their children, babies and older children.  She took the card and read it quickly.  She glanced at her sister and said "This is mom".  She asked for another one, and handed it to her sister.  My heart sank.  I gave her a sympathetic downward smile.  She did not ask questions and I knew I should keep walking, but then after a few feet of walking, one of her children grabbed me and said his mom wanted another card.  I knew that card was for grandma.  

I am so relieved that they have a little information.  That one little card may be the spurt of courage that is needed to be firmer with her doctor to at least look for ovarian cancer, in the hopes to rule it out.

I will never forget those words and the look on her face.  Imagine being at an event and being handed an ovarian cancer awareness card, sort of a shocker really.  Not something you would ever think to get, to be honest.

I write about this not to pat myself on the back or anything, because none of this is up to me.  I am just trying to do my part to give back.

Whether it's a national PSA or flash mob of one, we can all do a little something to help people be more aware of the whispers of ovarian cancer.

My friend Bob went out in his little town in Texas to do the same.  He distributed 100 cards and spoke with many women about ovarian cancer.  I have another friend who gave her pharmacy a bunch of cards.

So I leave you all with a few more little photos from yesterday.  I love you all and thank you for following along with me on my cancer journey.  God Bless you.

Love,
Denise







PS.....the dessert place is fantastic!
http://www.jodeesdesserts.com/#!home/mainPage  (Fabulous gluten free and dairy free desserts, yum)

PS again....Please visit Cancer Lifeline and view their incredible services.  They fell short of their goals this month and their unique services help all people dealing with cancer and their caregivers.  They have helped me so much.  http://www.cancerlifeline.org/

Saturday, September 29, 2012

Round Table with WEGO Health: our interview


It was such a pleasure and honor to speak with two other teal sisters and discuss increasing the awareness of ovarian cancer via social media.  WEGO Health is an organization that works to empower health activists.  Thank you!

WEGO Health Portal - empowering Health Activist
                                                               https://www.wegohealth.com/


Round table Recap: Ovarian Cancer

by Amanda
We had an incredible Round table last Friday in honor of Ovarian Cancer Awareness Month. While other cancers seem to get the spotlight – the symptoms of ovarian cancer are often mistaken for other things and misdiagnosis is common. As a woman I found the information absolutely invaluable. I’m so glad we got to know these three Health Activists – they are doing amazing things for the Ovarian Cancer and women’s health communities.  –Amanda

Roundtable Recap: Ovarian Cancer

by Marissa Herman

WEGO Health likes to highlight (and learn) about health conditions that aren’t necessarily as well known as others. We love to bring awareness and information to others who may be able to use the info to help themselves or those in their community. In last Friday’s roundtable we focused on Ovarian Cancer. We found three lovely women who are also trying to spread the word about Ovarian cancer,Carolyn(@karenecpaceocf), Connie (@conniescheel), and Denise (@servivorgirl). These three amazing women shared their stories and their helpful advice about early detection, advocating for yourself, and facts about Ovarian Cancer.

Connecting to the online community is a great way to meet others that share your passion for Health Activism and let you know you are not alone on this journey.  Social media has become a huge tool in connecting with others in your community.

How has social media and the online community changed your personal health journey?

Carolyn: By just making me wiser. I found out about the CA 125 blood test online. Going online has helped me be wiser about the things I need to watch out for.
Connie: I thought it was important that other people knew that at 32 you can be diagnosed with Ovarian Cancer and here’s what it’s like to go through it. I wanted to teach people this is how you cope with it and it isn’t a death sentence. Social media has just been the link to the world. I mean that’s the loudest voice available to us right now. Facebook, twitter, with social media you can reach a lot of people and through them it starts a chain reaction.
Denise: For me, I started it originally because I needed someone to talk to, I know that sounds kind of strange. I started seeing, because I became a member of Facebook and Twitter, I started getting more and more support. I started seeing that this is a really valuable resource to reach other women, and men, people and health care providers to maybe hear my story. Maybe it will change even one doctor, yes one medical provider learn a little bit more, pay a little more attention, anything to reach more people in his or her office, anything to reach more people so it is incredibly valuable.


Unfortunately, behind every lesser known illness there are bound to  be myths and misconceptions.

Carolyn : One of the main myths is that there is a certain age that get Ovarian Cancer and that is certainly not true. Like a lot of older people get it or mostly people that get Ovarian Cancer who have never had children, which is a myth.
Connie: A myth that touched me very personally was your weight. I think there’s a misconception that if you’re healthy and eat well and you’re thin, then you are immune to ovarian cancer, or all cancer.  And that’s not true. Just like if you drink and smoke and do all those things that you will get cancer. There are no guarantees either way.  I also think women more than men have been trained to just go with whatever your doctors say. You have to be your own best advocate, you have to be your own loudest voice because no one will fight for you like you will.
Denise: I would definitely have to agree about the age and health for sure, because I was told I was too young to have ovarian cancer 3 times. I don’t think we have enough about ovarian cancer to say what is and what’s not true about ovarian cancer. When it comes to ovarian cancer there is just so much we don’t know, the best thing we can do is know our bodies and listen to our bodies and read about it.

Not many people know about Ovarian Cancer.  What would you like to share with other Health Activists about it?

Carolyn: It’s affecting more and more women now. I have never heard of Ovarian Cancer when my sister was diagnosed. And how many women are like me? There are a lot of people that have no idea about Ovarian Cancer.
Connie: I think the most important thing is that ovarian cancer looks so much like so many other disease and I think people aren’t recognizing it as Ovarian Cancer. And we don’t want to scare people, but we want to encourage women to go to the doctor and rule out that they Ovarian Cancer. It may or may not be but people should rule it out as soon as possible.
Denise: Join other kinds of forums because one of the things is that our circle is very passionate about ovarian cancer because of how it sneaks up on us. I think that if Activists reach out in other communities and become a part of the group they can learn about Ovarian Cancer in that way. And I would encourage people to share each other’s organizations, promote each other, that’s important.


Ways other Health Activists help the Ovarian Cancer community

Carolyn: Use the internet. There are a lot of people out there, a lot of organizations including the one’s we are part of that are trying to be an advocate for Ovarian Cancer. So, definitely use the internet and volunteer. There are a number of organizations all around, Washington, Florida, Tennessee, that they can be a part of. Put the word out there, they should know the symptoms of Ovarian Cancers.
Connie: I agree with Carolyn, getting online, going to your local support groups and cancer centers and asking “what can I do?” There’s a great opportunity if you have Facebook, Twitter, to just start posting things and sharing things from websites. There is tons of great information available that we need to get circulating on an individual level.
Denise: Definitely reaching out on the internet and just searching for national and local organizations. I also like to reach out personally with the local organizations the one on one. Find your comfort zone; there are many ways you can help, many, many ways.

Programs, tools, information, or resources would you like to see created especially for those dealing with Ovarian Cancer

Carolyn:  I am not a survivor but I am a caregiver. There was nothing for caregivers of Ovarian Cancer. If there was more for the caregivers and tools for the caregivers, that would be helpful.  Something that could show this is what you do for this and this is what you can do for that.
Connie:  I agree, more support for the caregivers. I think, in a way, Ovarian Cancer patients and caregivers feel a little ostracized. I would like to see a change. An app to help organize your notes from your doctor and prescriptions would be nice. The biggest thing for me is a way to get complementary therapies to people. It should be more known for woman that there are other ways to heal and to cope.
Denise: I would like to re-emphasize that feeling of being ostracized. I needed resources, I needed help, I needed all sorts of things because my life was turned upside down. An education series, a video series of basic gynecological health to talk about what if it’s Ovarian Cancer and what are questions to ask when you get your surgery.  Such a simple, basic thing, but on a video you see a face, you see a real person talking about it. It would be easier to absorb it because it’s so scary.

What tips or advice do you have for someone who is just getting started in advocating and has decided to write a blog about their own fitness or healthy living journey?

Carolyn:  Know their bodies and know if something different is going on in their bodies.
Connie: Listen to your bodies, pay attention to yourself, value yourself, value your health, and find your peace.
Denise: To learn more about your family history and maybe keep a journal about how your cycles are an things like that. I think we’re taught to dismiss stuff, so maybe keep a journal of unusual things.
I would like to thank Carolyn, Connie, and Denise for talking with us. It was really interesting to learn all of the stigmas and gain new knowledge about this growing illness. They each shared valuable insight and great tips. Even though they each have a different story, they all share the need to spread the word about Ovarian Cancer.

Wednesday, September 26, 2012

Five-Cent Diabetes Pill From 1958 May Be New Cancer Drug: Health Jason Gale and Andrea Gerlin, ©2012 Bloomberg News Published 7:40 a.m., Wednesday, September 26, 2012


http://www.sfgate.com/business/bloomberg/article/Five-Cent-Diabetes-Pill-From-1958-May-Be-New-3895614.php


Five-Cent Diabetes Pill From 1958 May Be New Cancer Drug: Health

Published 7:40 a.m., Wednesday, September 26, 2012
Sept. 26 (Bloomberg) -- The next new treatment for breast, colon and prostate cancers, among others, may be a diabetes drug first approved in 1958.
Metformin, the most commonly used medicine to lower blood- sugar, is the subject of about 50 cancer studies globally, according to U.S. government clinical trial information compiled by Bloomberg. The research began after scientists found metformin prevented tumors in mice and that diabetics were less likely to develop a malignancy if they were taking the 5 cents- a-day pill than other diabetes medications.
The medicine is dispensed about 120 million times annually, according to a 2010 report in the journal Molecular Cancer Therapeutics. If the latest trials on breast and other tumors are successful, the drug could become a cheap weapon in the fight against a myriad of diseases including pancreatic and ovarian cancers. All told, cancer kills one in eight people and is the second-leading cause of death in most developed countries.
“The hope is that if it does show safety and efficacy, it would be available in a cost-effective way,” said Chandini Portteus, vice president of research, evaluation and scientific programs at Susan G. Komen for the Cure, a Dallas-based breast cancer advocacy group. “It would be wonderful for patients if we had something that we knew worked and was safe and low- cost.”
The organization has spent about $10 million investigating metformin for breast cancer, Portteus said. “We have to turn over every single rock to determine what the options are for patients who need them.”

Millions of Deaths

Global cancer deaths will climb to 13.1 million by 2030 from 7.6 million in 2008, the Geneva-based World Health Organization said in February. Cancer costs totaled $124.6 billion in the U.S. alone in 2010, according to the National Cancer Institute. Newer, more targeted drug therapies, such as Dendreon Corp.’s $93,000-a-year Provenge for prostate cancer, may add only a few months of life.
Metformin was the seventh most-dispensed medicine in the U.S. in 2011, according to a list published by IMS Institute for Healthcare Informatics in April that ranked a group of painkillers that includes Vicodin as the most-prescribed. A pack of 84 500-milligram tablets of the diabetes pill, taken twice daily, costs the U.K.’s National Health Service 1.37 pounds, or the equivalent of about 3 pence (5 U.S. cents) a day.
The MD Anderson Cancer Center in Houston is studying metformin in at least eight trials, according to a National Institutes of Health online database.

‘Safe and Cheap’

“It is safe and it is cheap,” said Donghui Li, an epidemiologist and professor of medicine at the center. “It reduces the risk and has better survival” in studies she’s done in pancreatic cancer patients.
Patients who had taken metformin had a 60 percent lower risk of developing pancreatic cancer, according to a case- control study Li published in 2009 in which she compared cancer patients taking metformin against people not on metformin.
Metformin didn’t benefit patients whose pancreatic cancer had already spread to other tissues, Li reported this year in the journal Clinical Cancer Research. Those patients whose malignancies were confined to the pancreas survived longer if they were on metformin -- an average of 15 months, or four months more than patients not taking the drug, she found.
More research is needed to confirm those benefits in patients as their disease is developing, Li said.
“I got a lot of calls from patients and other clinicians, but I told them I cannot give them a recommendation,” she said.

Lack of Funding

Further studies have been hampered by a lack of funding, Li said. Large-scale trials can cost tens of millions of dollars. Metformin, which Bristol-Myers Squibb Co. sold in the U.S. as Glucophage, lost patent protection years ago, meaning that manufacturers no longer reap significant profits from its sale.
Pamela Goodwin, an oncologist at Toronto’s Mount Sinai Hospital, is leading a trial in 3,582 breast-cancer patients at 300 locations. Data analysis from the five-year study may start in 2016 or 2017, according to Goodwin, who said she was ready to start on the research a decade ago, but lacked financial support from companies, including one that still had a patented version. She declined to identify the company.
“When they realized the results wouldn’t be available until they lost their patent, they pulled out,” said Goodwin, whose $25 million study is supported by the Canadian and U.S. governments as well as not-for-profit groups including the Canadian Cancer Society, the Breast Cancer Research Foundation and Cancer Research UK. Apotex Inc., a Toronto-based maker of generic medicines, is supplying metformin and a placebo used in the trial.

French Lilac

“All of the evidence has just become stronger while we waited,” said Goodwin, who is also a professor of medicine at the University of Toronto.
Metformin is a synthetic form of a compound found in French lilac, used as an herbal remedy for frequent urination in the Middle Ages. Inside cells, it acts like a weak poison. Mitochondria, the power source in cells, are tricked into thinking the body is exercising and needs to draw more nutrients and energy from the blood, according to Dario Alessi, a biochemist at the University of Dundee who studies how messages are transmitted within cells.
Registering low energy levels, cells turn off the inappropriate division that is a hallmark of cancer, he said. By lowering blood-glucose levels and sensitizing cells to the effects of insulin, metformin may help control levels of the hormone, which is implicated in cell division and cancer.

‘Very Open-Minded’

Alessi and colleagues suspected that if cancer cells were treated with metformin, they would be tricked into thinking they don’t have enough energy to divide and grow. He petitioned diabetes epidemiologist Andrew Morris to search a database of users of metformin and other diabetes drugs for their cancer incidence to test the theory.
“Me, being very open-minded, said, ‘but we’ve been using it for diabetes for 50 years and that’s all it does,” said Morris, now the University of Dundee’s dean of medicine and Scotland’s chief scientist. He and colleagues conducted two epidemiological studies based on observational data.
“We showed that those who hadn’t developed cancer had a greater tendency to have been prescribed metformin,” Morris said in an interview.
The results showed 20 percent fewer cases of cancer among diabetics taking metformin, Alessi said. “The nice thing is that this has been replicated by at least 10 other studies now with larger patient numbers in other parts of the world.”
Researchers are pooling the data to discern the cancer types metformin may be most protective against, Morris said.
When Alessi and colleagues gave metformin to tumor-prone mice, they found the drug delayed the emergence of growths by 30 percent to 40 percent, he said. In that way, metformin could be used to stop cancer cells before they develop into tumors.


--Editors: Kristen Hallam, Rick Schine

To contact the reporters on this story: Jason Gale in Melbourne at j.gale@bloomberg.net; Andrea Gerlin in London at agerlin@bloomberg.net

To contact the editors responsible for this story: Jason Gale at j.gale@bloomberg.net; Phil Serafino at pserafino@bloomberg.net


Read more: http://www.sfgate.com/business/bloomberg/article/Five-Cent-Diabetes-Pill-From-1958-May-Be-New-3895614.php#ixzz27d3aMncr