CDC Symptom Diary Card

Wednesday, January 25, 2012

PET Scan to be scheduled


On my way home from the oncology visit I decided to stop at the store, and met a homeless man eating samples from the deli soup cart.  He stopped me in my tracks with questions about movie characters, he was stuck on "Ghostbusters" and couldn't remember one of the actors.  Well, he was talking to the wrong person, because I can't remember stuff like that, so we had a heck of a time.

What caught me was that he was so engaging, polite, and outwardly interested.  He told me he was a veteran and had PTSD, and that the government gives him $500 a month.  He carries with him a bucket, his backpack and a squeegee.  He washes windows on cars to make extra money.  My mind flashed back to a time during college when a few of us drove to Mexico, and in the shanty towns children would surround the car, each with a squeegee, asking to wash your window for a quarter.

This man was tall, african american, handsome in a sense, but skinny as a rail.  He had on lots of layers but when I saw his waist I gasped.  It is heartbreaking.  He talked and talked and talked and talked and talked and talked.  He was well read, and put me to shame.

I gave him $10.  On my way out of the store, he stole a flower from the floral department and handed it to me.  He also kept asking for my phone number, but of course that wasn't going to give it to him, ha ha.  But he did give me a slight kiss on the back of my hand.  I can't believe I let that happen, but I wasn't afraid.

I drove away and he disappeared, probably went back into the store for more soup. I had not mentioned the obvious yesterday, but please keep this fellow in your prayers too.  What he must endure, I can't imagine.

Today my oncologist called to say my CT scan showed a few things and she wants to do a PET Scan.  I guess there is a small lesion in my lower pelvis and the one on my liver seems to be a concern.  She is being cautious and wants to check for activity levels in these areas.  They are small though, about half an inch or so.  My CA125 is 15, so that is good.  She said that if it were 100, then she would think I was in a recurrence.

So for now I await the nurse's call to schedule the PET Scan.  sigh

I scheduled a flight to Colorado the end of April, and I want to not be on chemo.....ugh....can't think about that I guess..........can't worry about that......if it looks like I need treatment then I'll take a short flight out early before I start treatment.  It took me over a year after I finished chemo the first time to be able to travel...........sigh.  This is the life of cancer, it comes and goes, it never completely goes away.

I feel nothing right now.  I have no control over this and ...................I don't know.  Anyway, I just pray that it's nothing to be worried about.  I was blessed to meet such an interesting person yesterday and I have a loving family, and am so grateful to God that my doctor is amazing.

Peace and Love,
Denise

Tuesday, January 24, 2012

CT scan and CA 125 on Tuesday

I have a follow-up with my gyoc-onc tomorrow.  Ct scan, Ca-125 test, and probably exam.  Usually I don't tell people much any more because the visits have been going great.  I'm going to attribute my severe fatigue to arthritis flare for now.  I'm confident all will be well.  Just putting it out there.  I'll post the results.

Yesterday for the first time I really visualized the size of the tumors that were removed during the initial surgery. 10 cm each, plus many more.  That's the perfect size of a grapefruit. Wow....

The first week in February I'm excited because I'll get to talk with some medical students and share with them what it was like to not be diagnosed, how cancer got missed and the goal is to help them be more aware of the subtleties of OC.  I'll let you know how that goes.  Had a great evening!!!!!  Got to see my nieces.....yay and spent dinner with my sister, her husband and the kids.  I'm smiling.

Monday, January 23, 2012

Left in the dust

This is a quick congratulatory note to my sweet sweet niece who passed one of her black belt tip tests over the weekend!  Her very gifted older sister got her black belt during the Holidays and now her little sister is on the way to earning her own.  I did not get to go to the graduation ceremony because I work evenings, but I was there in spirit.

I feel left in the dust because of how well conditioned they are.......

I have another niece and a nephew in another state who are remarkable hockey and soccer players.  I can't wait to get back home to see them play...just can't wait. I am so so lucky.  All of these children are amazing, cheerful, loving and mindful.  They're just darn good kids.

Although I was never blessed with the joy of being a mom, I feel as if I am partly their mom, if you know what I mean.

I just wanted to pass along some family cheer.  I wish I could be with all of them all the time..........sigh.

Be Love
Denise