CDC Symptom Diary Card
Thursday, September 30, 2010
Thursday, September 23, 2010
Update from Oncologist
I met with Dr. Gray today, what a joy. She shared good news, and I am relieved. I am still NED and my CA125 is now 10. She said the CT scan showed no new tumors and looked good, so I am relieved. Recurrence is my biggest fear.
I talked with her about my lingering issues with abdominal pain, fatigue, nystagmus, vomiting etc. She reinforced that the body can take up to a year to heal from the chemotherapy and surgery. But overall, I am improving. I see the Oncologist again in three months.
I need to watch my food intake probably forever, being careful with fiber. Haven't decided on an allergy test yet, but will just avoid peanuts for now at all costs.
This good news frees my mind and helps me to be more hopeful for the future. I meet with Dept of Vocational Rehabilitation in a few weeks and need to see if I qualify for any of their services. I can earn some money in addition to the small disability income I currently receive. If it is at all possible, my dream would be to have a part time job that is homebased, in advocacy or some form of computer work that has a mild training program.
So off I go to the next step while I continue to rebuild my strength, endurance and digestive health. Thank you God for blessing me with my mom, sister,brother-in-law, brother, aunts, and uncles who have been so supportive. Thank you God for giving me friends who have offered laughs, kind words and support from day one. Thank you God for blessing me with an amazing health team here in Seattle. God Bless everyone who has touched my life.
Be Love
I talked with her about my lingering issues with abdominal pain, fatigue, nystagmus, vomiting etc. She reinforced that the body can take up to a year to heal from the chemotherapy and surgery. But overall, I am improving. I see the Oncologist again in three months.
I need to watch my food intake probably forever, being careful with fiber. Haven't decided on an allergy test yet, but will just avoid peanuts for now at all costs.
This good news frees my mind and helps me to be more hopeful for the future. I meet with Dept of Vocational Rehabilitation in a few weeks and need to see if I qualify for any of their services. I can earn some money in addition to the small disability income I currently receive. If it is at all possible, my dream would be to have a part time job that is homebased, in advocacy or some form of computer work that has a mild training program.
So off I go to the next step while I continue to rebuild my strength, endurance and digestive health. Thank you God for blessing me with my mom, sister,brother-in-law, brother, aunts, and uncles who have been so supportive. Thank you God for giving me friends who have offered laughs, kind words and support from day one. Thank you God for blessing me with an amazing health team here in Seattle. God Bless everyone who has touched my life.
Be Love
Tuesday, September 21, 2010
Update on Breast Health
Today I went in for my mammogram and breast ultrasound. The nurse practitioner had recommended the ultrasound due to her locating some enlarged dense tissue on my right breast. Well hallalua and thanks Be to God, no lumps or abnormal tissue was detected today.
Because I am BRCA 1 mutation positive, I need to see the NP in three months for a follow up breast exam, just so she can determine if the area changes ins shape or size.
WHEW!
If I must have a mastectomy, I will have one. But for now, since the monitoring is going well, it is so so nice not to have to be so worried about breast cancer. I have enough to worry about with ovarian cancer recurrance rate issues.
So thank you all for your prayers. Thank you God for watching over me and giving me something to smile about.
Be Love and God Bless!
Because I am BRCA 1 mutation positive, I need to see the NP in three months for a follow up breast exam, just so she can determine if the area changes ins shape or size.
WHEW!
If I must have a mastectomy, I will have one. But for now, since the monitoring is going well, it is so so nice not to have to be so worried about breast cancer. I have enough to worry about with ovarian cancer recurrance rate issues.
So thank you all for your prayers. Thank you God for watching over me and giving me something to smile about.
Be Love and God Bless!
Sunday, September 19, 2010
Qigong and update
I am really pleased with the Qigong dvd I rented from netflix. Giam sells this dvd, and I decided that I need to buy it, as an investment in my health. My internal organs are so screwed up, so touchy, and unpredictable, that I am frozen sometimes unable to leave the house.
Qigong is a series of ancient Chinese postures and movement patterns that help to energize and release your bodies negative energies ( so far as I know). I have done the exercises a couple of times, and feel more balanced for a bit of time. It was suggested by one of my OVC sisters to try Qigong, and this seems to be a good fit for me. I am grateful for my OVC sisters.
Had my pelvic CT scan, bloodwork, and breast exam last Thursday. LONG day. Reminder, I'm also BRCA1 mutation positive, so I also have 6 month checkups. Next week I have breast ultrasound and mammogram and also a meeting with my gyno-oncologist. I've never had anyone give me a breast work-up like that before. Pulling, poking, stretching, pinching, pushing, rolling...my gosh. The good news is she found no "lumps" but did find some abnormal dense tissue on the right wall of my right breast, hence the ultrasound.
I am praying for clear pelvic CT and good CA 125/bloodwork. I will also be praying for a normal mammogram and ultrasound.
I just set up a future appointment with the state Voc Rehab center. I need to earn more than $600 per month to get my own place. So I need to find a part time job that pays fairly well and try to focus on what my future can be.
For now my mom is so gracious and allows me to stay with her, but she needs her space. She needs a life, so as long as I am not on chemo, I should be striving for a more independent and meaningful life.
I still sleep 12 hours per day though. I wish I knew why. Am I still depressed or is that side effects of all my meds???? Not sure, but I must return to a more reasonable sleep-wake pattern. Maybe I need help. I don't know, I just have to try harder to get up earlier.
Wish me luck on all my test results. Love you all. Be Love and God Bless YOU
Qigong is a series of ancient Chinese postures and movement patterns that help to energize and release your bodies negative energies ( so far as I know). I have done the exercises a couple of times, and feel more balanced for a bit of time. It was suggested by one of my OVC sisters to try Qigong, and this seems to be a good fit for me. I am grateful for my OVC sisters.
Had my pelvic CT scan, bloodwork, and breast exam last Thursday. LONG day. Reminder, I'm also BRCA1 mutation positive, so I also have 6 month checkups. Next week I have breast ultrasound and mammogram and also a meeting with my gyno-oncologist. I've never had anyone give me a breast work-up like that before. Pulling, poking, stretching, pinching, pushing, rolling...my gosh. The good news is she found no "lumps" but did find some abnormal dense tissue on the right wall of my right breast, hence the ultrasound.
I am praying for clear pelvic CT and good CA 125/bloodwork. I will also be praying for a normal mammogram and ultrasound.
I just set up a future appointment with the state Voc Rehab center. I need to earn more than $600 per month to get my own place. So I need to find a part time job that pays fairly well and try to focus on what my future can be.
For now my mom is so gracious and allows me to stay with her, but she needs her space. She needs a life, so as long as I am not on chemo, I should be striving for a more independent and meaningful life.
I still sleep 12 hours per day though. I wish I knew why. Am I still depressed or is that side effects of all my meds???? Not sure, but I must return to a more reasonable sleep-wake pattern. Maybe I need help. I don't know, I just have to try harder to get up earlier.
Wish me luck on all my test results. Love you all. Be Love and God Bless YOU
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