CDC Symptom Diary Card

Wednesday, March 11, 2015

Cancer.net Mobile APP

How are you today?

I was doing some research on organizing tips, such as for medical records, and I found this great APP from Cancer.Net!  Where was this when I was in front line chemo?  HA

I highly recommend that you take a look at this, whether you are a caregiver or a patient.

It is a repository of sorts for tracking symptoms and side effects of treatments, medications, notes and issues related to your condition and a resource with links to important resources within the Cancer.Net website.

I remember back in 2010 that it was a nightmare keeping logs, lists of meds, notes for doctors and finding resources. It was a job in the most literal sense to manage having cancer.  This APP could have saved me and my family a lot of extra stress, time and effort.

http://www.cancer.net/navigating-cancer-care/managing-your-care/mobile-applications

I am creating my symptoms tracker. This tool has common symptoms pre-loaded for selection and you can customize symptoms as well. I believe I will need to set reminders to go through them at the same time each evening and rate them, until this becomes a habit.  I have promised some people that I will report how this APP helps me.

I am a little excited about this because having these details readily available to your oncology nurse and doctor could greatly improve your overall treatment experience.  Especially at times when we are really tired and suffering, putting the symptoms into words can be difficult.   I hope you find this helpful.

Peace and blessings

Servivorgirl

Saturday, March 07, 2015

Women With Cancer Retreat at OLCC

Women with Cancer:  Spiritual Exercises and Prayer Retreat






Dear Child of God, 

May the peace of Christ reign in your heart.  This is an invitation to attend a Women with Cancer: Spiritual Exercises Silent Retreat this fall at Our Lady of Corpus Christi Retreat Center.  We hope that 22 women from across the United States will make this retreat to grow in faith and love of God and to experience His  Healing Grace.  We encourage you to consider joining us for this year’s retreat Thursday September 17 through Sunday September 20 of 2015.

Our Lady of Corpus Christi offers you a place of peace, of silence and of prayer.  Our Lady’s Retreat House is equipped with 22 private rooms with private bathrooms. While on retreat, you may want to spend time with the Lord in our quiet and intimate chapel in Our Lady’s Retreat House or take a short walk to our Perpetual Adoration Chapel, “the Blue Dome”, where our Lord is exposed in the Blessed Sacrament 24 hours a day.  Our Lady of Corpus Christi has 60 acres of grounds to explore, and a peaceful meditation garden to immerse yourself in God’s Creation; to rest, reflect and pray.

Except for participating in Mass, talks and other events, at Our Lady of Corpus Christi you experience the beauty of silence.  There is plenty of free time to rest, relax and listen to the Voice of God speaking to your heart, through silence. There are no TV’s, telephones, or any other type of media to distract us from our Creator.  You are asked to set aside all your thoughts related to your job, your family, and anything else that would prevent you from opening yourself up to Jesus. 

Mass is offered each day, and priests are available for confession and spiritual direction throughout the retreat.  The talks presented throughout the weekend will be based in the Spiritual Exercises of St. Ignatius of Loyola, but will have an emphasis on healing for women with cancer.  The retreat will be led by Sr. Anne Marie Walsh, SOLT, a religious sister of the Society of Our Lady of the Most Holy Trinity. Sr. Anne Marie is a breast and women’s cancer survivor three times over and has experienced first hand a woman's struggle with cancer, and the Healing Grace of God.  Three excellent, home cooked meals are served each day and ample snacks provided for time in between.  

The Women with Cancer: Spiritual Exercises Silent Retreat can be a powerful, life changing experience.  When we open ourselves up to God’s grace, His generosity will astound us.  He longs to pour his love, peace and joy into our souls! This retreat is an opportunity to relax and renew your mind, body and soul, and go deeper in your relationship with God.  

Please consider this letter as a personal invitation and contact one of our Retreat Captain concerning attendance at Our Lady of Corpus Christi Retreat Center.  Space is limited to 22 women.  If you would like to reserve a room please contact one of our Retreat Captains, who is listed below.  You may register by filling out the Retreat Registration Form via our retreat website:

To register, please select from the dropdown menu and you will se the link for women with cancer at http://www.deepprayer.org


May God bless you and your family abundantly.  
In Jesus through His mother,
Denise Archuleta
Our Lady of Corpus Christi Retreat Captain
servivorgirl@gmail.com

Friday, February 20, 2015

Are Products Labeled "BPA-Free" Safer? " By Brenda Goodman, MA Published by Web MD

Hello Everyone,

I read an interesting article today, and I hope you read it too.

Caustic Plastics: I think that I am going to rid my entire apartment of the plastic I can see.  

The dilemna here is our food is stored in plastics, it's everywhere.  Our busy lifestyles make it difficult to make food from scratch.  You go to buy shoes, bags, furniture, gadgets, electronic devices, toys, cars etc. and they are loaded with plastics.   This is especially dangerous for growing kids and teens I believe.

When I was a child we didn't have a lot of toys and we played outside.  Our time was spent on the grass, om a bike, in a tree, on the sidewalk, or on the floor.  Our toys were jump ropes, jax, cards, playing house or store and using blankets to make tents.  Hopscotch, tag, hide and seek, looking for 4 leaf clovers, turning clouds into horses and magic animals in the sky.  Hula hoops and the "The Game of Life" were a few of my favorites.

Oh and of course Lincoln Logs..........  We used our imagination.  Wow we had so much freedom as children back then.  I wish children had the same freedom today.

When mom cooked we really had not too many leftovers to store.  I remember a lot of corning ware and real glassware in the house.  Sigh, times have changed.

Please read and share the article with your friends and family.  Peace and Blessings to you.


Article posted in:

WebMD


Are Products Labeled 'BPA-Free' Safer?
By Brenda Goodman, MAReviewed by Arefa Cassoobhoy, MD,MPH
Feb. 3, 2015 -- Are goods labeled “BPA-free” healthier? Maybe not. Two new studies found that some chemicals replacing BPA in plastics, food packaging, and other products might also disrupt hormones, changing how the brain works and affecting fertility..................


"Recent studies have suggested that bisphenol-S, which is sometimes used in plastics labeled “BPA-free,” might have some of the same effects in the body as bisphenol-A. What's the concern?"

"Vandenberg: The concern is that these chemicals might mimic the actions of the hormone estrogen, disrupting development of the male and female reproductive tracts, the mammary gland, and the brain, among other things."

READ COMPLETE ARTICLE BY LINKING TO: 

Tuesday, February 17, 2015

Retreat Update and Giving

Hello Everyone,

First off I have very good news about our upcoming healing retreat. Our scheduled dates are from September 17, 2015 through September 20, 2015.  It gives me a nice burst of energy to write this post.

I have spoken with Sr. Laudem several times and I should have formal registration forms soon.  

I will broadcast the complete information, including registration links, as soon as I receive them.  

Please see the post "An Oasis of Hope and Love: The OLCC Retreat Center" dated 01-29-15 for more information about this special event.  

I have a CT scan coming up tomorrow afternoon.  There is a new pain on my right side. Since this could be due to any number of issues my goal is to maintain a balanced in attitude.  

A balanced attitude is a reasonable expectation, I think.  It says "I will allow myself to experience the range of appropriate emotions while I gather my thoughts, pray on it and then do something".  I feel like a professional CT scanee...ha.  I feel strong because I have faith.

I am drifting over to the subject of balance because the season of Lent is here.  For those who observe this season, it is the time to draw nearer to God by prayer, fasting, pennance and almsgiving.

Almsgiving provides each of us, healthy and unhealthy alike, ways unify with our family of neighbors.  As we renew our faith in God, we renew our spirit while helping others.  This gives us balance and can be very rejuvinating.

If you are healthy try to find some time to help a local charity or a neighbor in need.  If you are not well you can give by praying or making a small donation to charity. Maybe you have items that are in good condition and with a little help, they can be donated. 

Give to the homeless, if nothing else, a big smile.  Give them some cheer.  Try not to judge why they are in the condition presented. They need hope and our smiles, our reach, our hand releases them from alienation.

It feels good to give.  

Peace and Blessings,
Servivorgirl


Lord help me
to remember
that nothing
is going to happen
to me today
that You and I
together can't handle.


Amen.





Friday, February 06, 2015

N.E.D. The Movie Event Review

I hope you were able to attend the screening of N.E.D. The Movie yesterday, World Cancer Day.  This heartfelt documentary tells the story of gynecology oncology surgeons, and musicians, who dedicate themselves to educating people about gynecological cancers.  They love their patients and love performing their music, using their venue to raise awareness of ovarian cancer.

As a woman who was told that I was too young to have ovarian cancer, when I actually did have it, I fully appreciated the significance and importance of this movie and their mission.  I think these humble surgeons are amazing people, selfless in their cause.

Dr. Barbara Goff, of UWMC and SCCA in Seattle Washington, spoke after the screening.  She was kind, informative and encouraging.  She spoke of advances in treatment protocols and told us the history of how a small donation led her team to the compilation of important research that supports the symptom checklist that we use today.

Dr. Goff stated that the most important take-away from this event was that the parents of boys and girls need to understand the importance of the HPV vaccination.  The reduction of future cancers is staggering when the vaccine is given.

I thank God every day for my time on earth and pray that more and more people see this documentary. The conversation about cancer is never easy and that is especially true when it comes to women's cancers.  The truth is that all women need to know the basic symptoms of these cancers.

Here is the link to N.E.D. The Movie's storywall:

http://www.nedthemovie.com/story-wall/

Peace and Blessings
Servivorgirl

P.S.   I am in the process of scheduling our special retreat at The OLCC Retreat Center.